There is also a Usenet newsgroup which discusses this issue ocassionally -
alt.disorder.sleep. When I first discovered that RLS was a "real" ailment,
I gleaned a lot of useful information from this group.
Ron Reiner ([log in to unmask]) 49 + 1 yr
At 04:07 PM 9/20/96 -0400, you wrote:
>There is a RLS Cyberspace Support Group you may want to monitor. E-mail
>David Shaler at [log in to unmask] and request being added to the mailing
>list.
>
> ----------
>From: "PARKINSN: Parkinson's Disease - Information Exchange
>Network"[SMTP:PARKINSN@ listserv.utoronto.ca]
>Sent: Friday, September 20, 1996 6:29 AM
>To: Multiple recipients of list PARKINSN
>Subject: Restless Legs, sometimes Arms, and Body
>
>Subject: Restless Legs, sometimes Arms, and Body Syndrome
>To: Multiple recipients of list PARKINSN <[log in to unmask]>
>
>
>For a few years it appeared to me that RLS was not common in PWP as I
>mostly
>got messages from non-PD with restless legs syndrome. I am not quite sure
>what happened lately but the flood gates opened and RLS has become a
>large
>part of my incoming e-mail from PWP/RLS.
>
>I am scheduled for a left pallidotomy this Wednesday by Dr. Lauri
>Laitinen in
>Stockholm. I had a successful right side done there in May l993. If I
>get
>as good a result from the left pall. I will be one happy fella. Too bad
>pallidotomy doesn't help RLS as it does PD. Maybe a slight shift of the
>probe would do wonders eh? Ever hopeful!
>
>I will be signing off this list for a few weeks but I don't want to lose
>the
>thread of RLS/PD we seem to have unleashed on this BB. Please send
>RLS/PD
>messages to my e-mail. I don't know what we can do with the information
>but
>it might show us something.
>
>Regards,
>Barbara Yacos, RN
><[log in to unmask]>
>
>
