WHO SAID BRAIN SURGERY DOESN'T CAUSE A LITTLE CONFUSION ? BUT LETS SEE IF
WE CAN DEVELOPE A LITTLE RELEVANCE IN THE FOLLOWING THOUGHTS.
*** THE LEFT SIDE PALLIDOTOMY HAS DONE WONDERS FOR ME...WITH EACH
PASSING DAY I MARVEL AT THE THINGS I CAN DO TODAY THAT I COULD IN NO WAY
CONSIDER DOING YESTERDAY. LIKE WALKING DOWN THE STREET TO PICK UP MY MAIL
THIS AFTERNOON. IT WAS BRISK WITH A 15 MILE PER HOUR BREEZE AT MY
BACK...COOL ENOUGH TO WEAR A SWEATER....AND YET THE SUN WAS REAL
WARMING....AND JUST A HINT OF COLOR IN THE LEAVES. TODAY RATES AN A+
*** GOT TO SEE THE STILLS FROM MY SURGERY.THE PHOTOGRAPHER DID A GREAT
JOB BOTH BLACK AND WHITE AND COLOR ALTHOUGH I FIND B+W TO BE A BETTER STORY
TELLER THAN COLOR. AND ONE CAN TRACE THE SURGERY FROM START TO FINISH VIA
THESE STILLS....WITH OUT A WORD BEING SAID. I WOULD BE QUITE WILLIMG TO
MAKE SUCH A TOUR AVAILIABLE TO ANY OF YOU GUYS WHO ARE CONTEMPLATING A
PALLIDOTOMY. AND THE SAME GOES FOR THE VIDEO WHICH I SHOULD SEE OVER THE
WEEKEND.
*** AND NOW A CONCERN I MENTIONED IN A RECENT "PREVIEW". THIS IS FROM
THE SUMMER '96 PARKINSON'S DISEASE FOUNDATION NEWSLETTER AND IT CONCERNS A
"REGISTRY FOR PARKINSON'S DISEASE".IT NOTES THAT THE NEBRASKA PARKINSON
ACTION INFORMATION NETWORK HAS ACHIEVED LEGISLATION MANDATING THE
"REPORTING OF
PARKINSON'S DISEASE........THE PURPOSE OF THE REGISTRY IS TO PROVIDE A
CENTRAL DATA BANK ...........
PHYSICIANS WILL BE REQUIRED TO REPORT ALL PATIENTS DIAGNOSED WITH
PARKINSON DISEASE OR A RELATED MOVEMENT DISORDER AND PHARMACIES WILL REPORT
PATIENTS TAKING DRUGS COMMONLY PRESCRIBED FOR THE TREATMENT OF PARKINSON'S
DISEASE............PROTECTIONS HAVE BEEN BUILT INTO THE LEGISTRATION TO
ENSURE ACCURACY OF REPORTS AND CONFIDENTTIALITY OF INFORMATION.ACCESS TO
THE DATA WILL BE AVAILABLE TO ANY QUALIFIED RESEARCHER. THE REGISTRY WILL
CONTAIN THE INDIVIDUAL'S NAME, SOCIAL SECURITY NUMBER, DATE OF
BIRTH,GENDER, ADDRESS AT TIME OF DIAGNOSIS,CURRENT ADDRESS,PHYSICIAN,AND
IDENTIFICATION OF REPORTING SOURCES AS WELL AS ANY ADDITIONAL INFORMATION
THE DEPARTMENT DEMONSTRATES IS REASONABLE TO IMPLEMENT THE PARKINSON'S
DISEASE REGISTRY ACT".........THEY EVEN HAVE A PROVISION FOR
SELF-REPORTING!
EVEN TYPING THIS SECTION SENDS A CHILL DOWN MY BACK. SO WHAT DO YOU
ALL THINK? IS BIG BROTHER
WATCHING OVER US? NOW YOU FOLKS WHO PUT OFF TELLING YOUR EMPLOYER FOR FEAR
OF BEING MISUNDERSTOOD,DISCRIMINATED AGAINST OR FIRED WILL NOT HAVE TO
WORRY ABOUT THIS LITTLE SUBPLOT IN YOUR LIFE BECAUSE YOUR MD.WILL DO IT FOR
YOU!!! AND IF HE FORGETS DON'T WORRY YOUR LOCAL PHARMACISTS WILL DO THE
DASTARDLY DEED FOR YOU OR HIM.DON'T WORRY, YOU SAY, IT'S ALL PROTECTED BY
THE RULES GOVERNING
CONFIDENTIALITY...LIKE ACCESS TO THE DATA WILL BE LIMITED TO"ANY QUALIFIED
RESEARCHER".ISN'T THAT AN OXYMORON ?? WHAT IF YOUR MD REFUSES TO
PARTICIPATE?.AND WHY WOULDN'T THEY? THE PAPERWORK ALONE MUST BE STAGGERING.
WHAT IF YOUR PHYSICIAN DROPS YOU AS A PATIENT BECAUSE YOU HAVE BEEN
DIAGNOSED AS HAVING PD. WHAT IF YOUR DIAGNOSIS IS WRONG AND YOU DO NOT HAVE
PD. TRY TO GET OFF THE LIST. RIGHT! AT MY LAST COUNT THERE WERE ABOUT 26
PARKINSON LIKE DIAGNOSES AND MOST OF US KNOW THAT THE DIAGNOSIS WAS A LONG
TIME COMING. WHEN DO YOU GO ON THE LIST AND WITH WHAT DIAGNOSIS??
I SUPOSE I SHOULD CHECK THIS OUT IN ADVANCE BUT I'M INTERESTED IN
LEARNING WHAT THOSE OF YOU IN NEBRASKA THINK ABOUT THIS ISSUE.I WILL
FOLLOW UP TOMORROW BY CALLING THE NPAIN AT 402-488-7454,
*** I'LL BE PLEASED IF ONE OR TWO PEOPLE RESPOND TO THE ABOVE BUT THE
ISSUE OF STATURE SURE GAINED A LARGE RESPONSE. I'M NOT SURE WHERE TO FILE
MR.J.R. BRUMAN'S INTERESTING "CASUAL SURVEY"."INTERESTING BUT LITTLE KNOWN
FACTS" OR "HUMOR" OR WHAT?
*** BIOFEEDBACK....CHARLES COUNTRYMAN....YES I'VE GIVEN IT A TRY AND
FOUND IT WORTH THE EXPENSE AND THE TIME.FROM IT I LEARNED THAT I CAN RAISE
OR LOWER THE TEMPERATURE IN MY FINGER TIPS, STOP THE TREMOR IN IT'S
TRACK...FOR A SHORT TIME...... AND IT WAS VIA BIOFEEDBACK THAT I LEARNED
ABOUT SELF HYPNOSIS AND CONTROLED OUT OF BODY EXPERIENCES. NO CURE BUT A
VERY INTERESTING EXPERIENCE.
MY VERY BEST
GEORGE LUSSIER[[log in to unmask]
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