 |
 |
Will: As I explained to Barb, thanks to legislation establishing the database (Registry) and the restrictions to access to database, lifting of driver's license is not a possibility......(only qualified researcher.) These same restrictions permit accessibility to Mayo Clinic or University of Pago Pago to conduct the epidemiological study. This registry is only one piece of the research...........but the piece that can provide information about the citizens of a specific area (in this case the state of Nebraska) Hypothetical case: If Mayo wanted to do epidemiological study of PD in Nebraska..........they would have to contact every MD in the state (and surrounding states) for data.............not a simple job. However.................one request to state health dept will yield this data. Qualified researchers (who worked with the Parkinson's community to promote this legislation)developed the information to be requested on registry data...........this is not information being developed by an elected official. The Parkinson's community in Nebraska was involved in this Registry from step 1. Rita Weeks