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At 10:20 09/10/96 -0400, George Lussier wrote: >Dear Reader, > I"m curious. Would you be for or against a State mandated registration of >all PDers, This sounds like Big Brother watching to me. >THE DATA WILL BE AVAILABLE TO ANY QUALIFIED RESEARCHER. THE REGISTRY WILL CONTAIN THE INDIVIDUAL'S NAME, SOCIAL SECURITY NUMBER, DATE OF BIRTH,GENDER, ADDRESS AT TIME OF DIAGNOSIS,CURRENT ADDRESS,PHYSICIAN,AND IDENTIFICATION OF REPORTING SOURCES Who is considered a qualified Researcher? >WITH REGARD TO ACCESS TO QUALIFIED RESEARCHER:NAME,ADDRESS,ETC.IS NOT AVAILABLE TO RESEACHER.ONLY GENERAL LOCATION OF PERSON WITH PD If access to this personal information is not available to the researcher, why is the information needed? >AS WELL AS ANY ADDITIONAL INFORMATION THE DEPARTMENT DEMONSTRATES IS REASONABLE TO IMPLEMENT THE PARKINSON'S DISEASE REGISTRY ACT" What's reasonable? Race, religion, political beliefs? >THEY EVEN HAVE A PROVISION FOR SELF-REPORTING! What happens if the physician or pharmacist does not comply? Do they or we end up in concentration camps? >THAT THE PURPOSE OF THE REGISTRY IS FOR EPIDEMIOLOGY STUDIES This may be the purpose...but why should it be mandatory? Judith