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Gaylon <[log in to unmask]> wrote:

<<<Maybe it's wishful thinking, but I get excited and a very good feeling just
thinking about getting the job done ourselves. Rather than putting ourselves
at the mercy of, and obligated to, politicians.
snip
So, with this I close. Before you start to think of all the reasons we CAN'T
do this, think first how we COULD! I believe there is enough talent and
knowledge among the 1300+ on this list to get the job done.
snip
I anxiously await the civil, supportive and positive thoughts of all who have
taken the time to read this. Flamers will be squirted with my garden hose. (:0>>

Getting the job done ourselves - is crucial.  I feel kinship with Alan
Bonander that many have expressed.  I am continuing what I worked toward
with him: getting to the truth - the reality - of the known about PD.  And,
spreading knowledge which is as correct as possible among those who have
the affliction, care for those with it, or provide assistance as physician,
researcher, drug supplier, adviser, et cetera - is the kernel of all this.

All of us "do research" in the sense of gathering information.  We can
support those who do the "best science" by funds, encouragement, and
directly participating as volunteers.  Learning to report our symptoms and
changes that medication produces is beneficial to judging efficacy of drugs
or treatments.  The variability of response is a challenge that "science"
must unravel to provide the understanding of the degenerative process(es).
"Science" is seeing accurately and describing precisely the etiologic
process.  Each of us can contribute to removing the distortions from what
is currently known.  The collective state of art eventually produces
break-throughs by one or two of those who see best.

Discuss what works and why - part of what messages are comprised - so that
we reinforce each others insight (personal knowledge cognition).  Every
little bit helps.

ron      1936, dz PD 1984  Ridgecrest, California
Ronald F. Vetter <[log in to unmask]>
http://www.ridgecrest.ca.us/~rfvetter/rcpdsg.html/  (Parkinson group)
http://www.ridgecrest.ca.us/~rfvetter/