George...... I think folks are just plain ol LAZY. I've responded in kind
(tho I didn't have MGM or Warner Bros. do a video of my pallidotomy!) <grin>
that I'd be happy to share my own experience - which was a very positive one.
In fact, I sent email offering either emailed information or would go voice
via phone if that was what was preferred. Addmittedly, a few people did
wanna talk on the phone about the surgery and we did. It's a SUCH a good
feeling to then read here that they've had their respective surgeries, and for
the most part experienced great relief from PD symptoms (my heart goes out to
those who've had only mild or minimal relief)
But I feel, basically, if someone here asks for information about a
pallidotomy FROM those who've had 'em, and IF we don't respond DIRECTLY to the
list with our idividual stories (and the LAST thing I wanna do is to bore
everyone here by constantly repeating the history of my surgery!), that our
offers for privately conveyed information is simply ignored for the most part.
Dunno why, really. Maybe they don't read any messages that dont 'have THEIR
name at the top? I just haven't a clue....
Barb Mallut
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From: PARKINSN: Parkinson's Disease - Information Exchange Network on behalf
of George Lussier
Sent: Wednesday, October 09, 1996 8:58 PM
To: Multiple recipients of list PARKINSN
Subject: AN OFFER YOU CAN REFUSE?
Dear reader,
A thought has passed my petty mind of late and it concerns several
people who have requested assistance with geathering information
re:Pallidotomy surgery. I have offered to share my recent surgery with you
all via e- mail,the phone,black and whites or color stills or a video but
no one has be in touch regarding this project. I had not considered
charging for the loan arrangement except for postage. Although since I have
been spending mucho time in my local library looking for funding to cover
for this project and an expanded version I've begun to think of charging on
a sliding-scale but that in the future.
None of the film is bloody. One might even say that it was done in good
taste.I'm taking it on the road soon...the local Pd support group. So what
is it? Do I come across as a jerk or some such thing.
Frank answers accepted.
thanks for listening to my late night moaning but you know I couldn't
have stayed up this late and been able to use my computer as little as two
weeks ago so all is well in Acton, Mass this fine late night.
My Very Best
George Lussier[[log in to unmask]
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