Laura Wallencheck writes:
<My family has received many generous tributes to honor my mother who died
<Sunday.
<Can anyone suggest here or by private note which of the three main PD
<organizations best serves the interests of PD patients and research? We
<particularly want the largest portion of each dollar to be spent on
<providing services/research and =not= on administration/administrators.
<Our candidates are:
< American Parkinson Disease Association
< National Parkinson Foundation
< Parkinson's Disease Foundation
<Many thanks,
< ljw
Dear Laura,
My sincere condolances on your loss.
Not to disparage the excellent organizations on your list, I nevertheless would
like to mention the organization that I have been a member of since I was
diagnosed. I find that it gets very little mention, maybe because it does not
spend money for purposes of publicity. Possibly for that reason they also don't
have an 800 number.
Until I found out about this ListServ, their excellent quarterly newsletter was
almost the only source of PD information I had.
This organization is:
United Parkinson Foundation
833 West Washington Boulevard
Chicago, Illinois 60607
312 / 733-1893
This may make a choice more difficult, since I don't have a way to compare, but
I would like to urge consideration of my suggestion.
Will A. Kuipers ( 75 / dx '91 )
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