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Now that several of you have commented about your distrust of government agencies and privacy invasion with regard to the Registry of PD patients in NE.............please check your original copies of the Udall Bill. I think you will find that one of the mandates of the original bill included a Registry of PD patients at the national level. Perhaps we vote more frequently in NE or know what is going on in our legislative halls and offices..............but we work with our elected officials and state agencies. Most of the people we work with in these offices are our neighbors and friends....they are not brought in from another planet.....we put them in office and we remove them from office. In Nebraska, the government is still of and by the people. sorry, that some of you live in states without responsible government staffing. (I am not native Nebraskan.......have lived on both coasts as well as the mid continent..........only in NE since 1989.) If you are so afraid of government intervention, why do you want the Udall funding? There are valid reasons to be opposed to a registry........but I have not seen them posted in the past 48 hours. I have seen instead people jumping to conclusions without gathering facts. I have seen fear of a government that is supposed to represent us. Perhaps Jeff and others will find my comments out of place. But I would just like to see a little less hysteria and a little more thought put into what we are seeking in the way of help with the challenges that we face. This legislation was written by the Parkinson's community. Presented to the legislative committee and PWP pleaded with them to enact the legislation. We were not duped or drugged into accepting this Registry. PWPs and CGs worked with the researchers and legislators in order to bring this to a reality. Once again, I will challenge any one of you opposed to the registry to explain to me how an epidemiological study will be done without this information? Who will fund this basic tool? If it is possible to do the study, why hasn't one been published prior to this time by a valid researcher? Rita