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FYI - there is also a fetal tissue transplant program in Los Angeles that is NOT a double blind study (at the Good Samaritan Hospital). This program has been in existence for 4 1/2 years. Carole >---------- >From: Joyce Tames[SMTP:[log in to unmask]] >Sent: Monday, October 14, 1996 6:20PM >To: Multiple recipients of list PARKINSN >Subject: Re: Fetal Tissue Surgery in Sweden > >Before I choose a Pallidotomy I investigated the alternatives including FTT. > >Since it was impossible to receive tissues here outside the NIH double blind >study, I made contact with the leading (maybe only) FTT neurosurgeon in >Sweden. > >We spoke a long time. The bottom line is that they too are under strict >guidelines. The Swedish government permits access to FT materials in a >quantity sufficient to satisfy the needs of Swedish citizens. > >Despite all my lures and the fact that I have facilities to live in Stockholm >for any length of time to satisfy the govt., doctor flatly refused to >entertain my proposed visit there for anything other than a social >visit....no FTT for me in Sweden. > >I cannot be sure I heard the same from others.... > >FYI there is a program still available here in the states in the form of >this blind study being done in Denver. If your interested, contact DR. >STANLEY FAHN'S office at Colombia Pres. Hospital in NYC 212 305 5277 > >Also there is a startup program in Halifax Nova Scotia. Sorry dont know the >names. > >good luck > >Joyce >