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I am with Diane on this.  I think it is a very good suggestion.

Laurie

>Why not simply register date of birth, gender, age at time of diagnosis,
physician, reporting sources and additional information.  I fail to see why
a researcher would need my name and SSN.  If personal contact were to be
necessary, the physician could be the liaison.
>
>Thought provoking, it is.
>
>Diane McHutchison
>Englishtown, NJ
>
>[log in to unmask]
>Long distance caregiver for Dad (68/6+), who lives in Pennsylvania
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>