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Laurie.. My pallidotomy was indeed covered by Medicare. I understand that shortly after I had the surgery (It wasn't my fault, people!!!) <grin> Medicare changed their policy about paying for pallidotomies claiming them to be "experimental." However, as I understand it, there are amy number of folks STILL getting Medicare to pay for the surgery. GO ASK! Maybe it's a case of the "squeaky wheel getting the oil?" Barb Mallut [log in to unmask] ---------- From: PARKINSN: Parkinson's Disease - Information Exchange Network on behalf of Laura and Michael Rogers Sent: Thursday, October 17, 1996 12:57 AM To: Multiple recipients of list PARKINSN Subject: Re: AN OFFER YOU CAN REFUSE? I think it is very generous of you both to even offer private consultation or individual support as you do. If the pallidotomy was available thru medicare I would have my mother inl aw get it in a heart beat. Unfortunately neither she nor I can afford it. Laurie >George...... I think folks are just plain ol LAZY. I've responded in kind >(tho I didn't have MGM or Warner Bros. do a video of my pallidotomy!) <grin> >that I'd be happy to share my own experience - which was a very positive one. >In fact, I sent email offering either emailed information or would go voice >via phone if that was what was preferred. Addmittedly, a few people did >wanna talk on the phone about the surgery and we did. It's a SUCH a good >feeling to then read here that they've had their respective surgeries, and for >the most part experienced great relief from PD symptoms (my heart goes out to >those who've had only mild or minimal relief) > >But I feel, basically, if someone here asks for information about a >pallidotomy FROM those who've had 'em, and IF we don't respond DIRECTLY to the >list with our idividual stories (and the LAST thing I wanna do is to bore >everyone here by constantly repeating the history of my surgery!), that our >offers for privately conveyed information is simply ignored for the most part. > Dunno why, really. Maybe they don't read any messages that dont 'have THEIR >name at the top? I just haven't a clue.... > >Barb Mallut >[log in to unmask] > >---------- >From: PARKINSN: Parkinson's Disease - Information Exchange Network on behalf >of George Lussier >Sent: Wednesday, October 09, 1996 8:58 PM >To: Multiple recipients of list PARKINSN >Subject: AN OFFER YOU CAN REFUSE? > > Dear reader, > A thought has passed my petty mind of late and it concerns several >people who have requested assistance with geathering information >re:Pallidotomy surgery. I have offered to share my recent surgery with you >all via e- mail,the phone,black and whites or color stills or a video but >no one has be in touch regarding this project. I had not considered >charging for the loan arrangement except for postage. Although since I have >been spending mucho time in my local library looking for funding to cover >for this project and an expanded version I've begun to think of charging on >a sliding-scale but that in the future. > None of the film is bloody. One might even say that it was done in good >taste.I'm taking it on the road soon...the local Pd support group. So what >is it? Do I come across as a jerk or some such thing. >Frank answers accepted. > thanks for listening to my late night moaning but you know I couldn't >have stayed up this late and been able to use my computer as little as two >weeks ago so all is well in Acton, Mass this fine late night. > >My Very Best > George Lussier[[log in to unmask] > >[log in to unmask] > >