Here! here! David......time for another of your tales. Humour is so important to us all. regards from wet old Norfolk, Emma >Probably a misleading title but it leads me into something which has been >concerning me more and more in recent weeks as a result of reading messages >on this list.This was brought to a head by a recent posting from Berbado who >seems to have got himself and I hope I don't sound too critical thoroughly >confused on the subject of medication which is let's face it probably the >most important and potentially rewarding subjects dealt with on the list and >yet because of its mainly anecdotal character one of the hardest to evaluate. > >What is certainly evident is that the bulk of advice contributions come from >subscribers who have had PD for several years or their PD is particularly >severe and also a lot of requests for advice are re worst case >scenarios.This I believe tends inevitably to promote an unbalanced view of >the disease because there is no input from the thousands and thousands of >sufferers who could be jogging along quite happily without any of the awful >side effects mentioned so frequently.If you look at the results from >independent clinical trials it is evident that the incidence of particular >side effects are much less prevalent than would appear to be indicated by >list 'gossip' > >Also in the list one tends to hear most noise from or about pd people with >difficult or intractible problems. > >Having said all this I still think the list is great and required reading >for anybody seriously interested in this baffling disease but although in >the past I have been active in promulgating its merits to the 'unconverted' >I am beginning to wonder whether there should be a 'HEALTH >WARNING'--'Reading this might confuse you and seriously damage your peace of >mind.Access denied to anxiety prone people'And when somebody from a National >PD organization said to me recently 'No we are not keen on giving out >information about the Internet as we have no control on what appears and >might appear to be endorsing the views or information put forward' I began >to wonder whether she was making some sort of valid point.? > >