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I have witnessed these symptoms in Dorothy (my mother-in-law).  Her writing
is so small it is almost unreadable,  she only wrotes now to sign checks.
It took a long time before she would actually askfor help.  So far she
hasn't hadany problems or been treated badly.  But she has the tremors very
visibly to show.  It takes a lot to admit you need help.  there isn't
anything wrong with typing up a shopping list or directions,  I do it myself
and there isn't any problem with my writing.  Dorothy recently got a Word
processor to help her out.  I really wish that she had a real computer so
she cold hook onto the net and meet you wonderful and supportive people.  :)
Laurie
[log in to unmask]
>I have to agree with Ernie.....I find the lack of handwriting a major
>frustration. It seems daft to type shopping lists on the computer and take
>down travel directions on a memo recorder.  I have little to no tremor to
>"declare" to the world  I have PD and I hate the strange looks  when I say I
>can't write.   They look at you as if you are an illiterate idiot!  That is
>one thing I am not!
>
>Happy typing everyone!
>
>  Emma
>
>>Jacob...
>>
>>It seem to me we're each indiviudally bothered by so many different PD
>>symptoms, that whatever is the worst per individual IS the worst indignity
>>THAT person suffers from the disease.   IF micrographia (tiny handwriting) IS
>>the worst PD symtom that Ernie suffers (and lucky HIM if it IS....) then why
>>belittle his feelings about it?  He WANTS to be "normal," and to be able to do
>>one of the simplest tasks that a "normal " adult person does.... to handwrite.
>>
>>This is a matter of "pride,"  and perhaps denial, and controlling our own
>>life..(and maybe ignorance about PD, too).  It IS embarassingly frustrating to
>>have to ask others to handwrite for us.  And it IS embarassing to be forced to
>>admit not only to yourself but to a roomful of strangers that ya need that
>>help because your have Parkinson's (or any disease) and that you've reached a
>>stage where you can't do eveyrthing for yourself, and must humble yourself to
>>ask strangers in a public place for assistance in accomplishing such a simple
>>act.  It's embarassing AND dehumanizing.  It is embarassing to feel
>>"different" than everyone else in that room.
>>
>>We each adjust to, and eventaully accept that we have this terrible disease
>>only when IT forces us to, and not before.  How many of us have bargained with
>>God or whatever we believe or don't believe in (gee.... is that politically
>>correct enough?) <grin>, saying something like, "Well, THIS I can live with,
>>even tho I can't button a shirt ay longer or tie my shoes (or handwrite)...
>>but PLEASE just don't let it get any WORSE?"
>>
>>IF not being able to write IS the worst thing about having PD that Ernie has
>>had to adjust to then whom amongst this group of individuals hasn't faced some
>>other PD symptom and said, "I have stood it all, but THIS I can't stand?"  And
>>who are ANY of US to consider that personal loss a "trivial" matter?  And whom
>>of us has not grieved for the loss of a "normal" function due to PD?
>>
>>NOTHING about Parkinson's is "trivial" for anyone who has it, I believe.
>>
>>Barb Mallut,
>>[log in to unmask]
>>
>>
>>----------
>>From:   PARKINSN: Parkinson's Disease - Information Exchange Network on behalf
>>of Jacob Drollinger
>>Sent:   Tuesday, September 17, 1996 10:21 AM
>>To:     Multiple recipients of list PARKINSN
>>Subject:        Re: Does anyone else have these symptoms
>>
>>Dear Ernie,
>>
>>I don't want to sound rude or anything, but your letter seems to be quite
>>trivial. I would give my eye teeth to swing a golf club without falling over,
>>much less make good contact. I write quite well, a little slow, but large and
>>clear, but I would give that up in a heartbeat to be functioning as well as
>>you are. Take heart, Ernie, help is not too far around the corner.
>>
>>Jacob
>>
>>
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