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Brian, Thank you for your input. I read it to Dorothy and i will really push it. This neurologist is rather off the ball as far as i am concerned. I Highly agree with you that she should get another one. I also see this neuro and an NOT impressed. She changed my mediccation w/o even meeting me in person. I was pregnant and my OB/GYN contacted her. I had been on the same meds for epilepsy for my first child and he turned out great. My neurologist/surgeon is Tennessee had informed me that I was on the safest meds possible. Over the phone she told my OB/GYN to take me off the mysoline. It happens to be the controlling drug in my case. I was over 5 months in my pregnancy, after having half the meds taken away I had 3 grand mal seizures. I hit my head reall hard it was also the same time that my baby stopped growing inside me. I went back on the meds I was taking before. My son was born a month early weighing 3 pounds 4 1/2 ounces and only 15 1/2 inches long. Relevant? I don't know for sure. There is no proof. But you don't want to hear about my experiences with this dr. This dr tried to put Dorothy on Sinemet once, then when Dorothy had problems with nausea and stuff, took her off of it. It also lowered her blood pressure to almost nothing. Then her nurse called back and told her to go back on it. The nurse was telling her one thing and the neurologist another. They almost killed her that way. My sister-in-law who is a nurse practitioner and keeps well up on all the meds, suggested that Dorothy ask her dr about taking the smaller doses of SInemet and sort of work it into her system. She (the neurologist) said maybe next year. Well it is next year.....nothing has been done toward that. Dorothy has been to see her and she didn't find any changes worth seeing her about. Dorothy is bad enought that she qualifies for a handicap sticker on her car. I wish that I could send Dorothy to the dr I went to in Knoxville. I have yet to find a good neurologist in Billings Montana. I hear that this dr Mosely who does the thalatomy (sp) and pallidotomy is pretty good but only takes patients he operates on. Since Medicaid doesn't cover that she can't go there. But we willl definitely find her a new one, if I have to do it myself. Laurie >On Tue 29 Oct, Laura and Michael Rogers wrote: >> >To: PARKINSN@[log in to unmask] >> >From: [log in to unmask] (Laura and Michael Rogers) >> >Subject: only once a year? >> > >> >I am highly inerested in how often a PWP should see her or his dr. >> >My mother-in-law (who has PD) is quite progressed in the disease and is >> getting worse all the time. She is on 2 5mg Eldypryl and it helps some. >> But her walk is getting worse she used to go for walks now barely leaves the >> house. She has the shaking everywhere, can't write and is easily cinfused >> and has the mask, just to mention a few things. She also has the moods of >> nervousness and depression accompanied often by tears. But her dr who >> recently about 2 years ago, diagnosed Dorothy as having PD, insists that she >> isn't getting worse at least not enough to rate seeing her neurologist more >> than once a year. > >> >Is this normal for a neurologist to want to see a patient with progressing >> PD only once a year? >> >I would appreciate your input on this. >> > >> >Laurie >> >[log in to unmask] >> > >> >> >Hello Laurie. I find it almost impossible to understand how someone with PD >can be treated in this thoughtless manner. Perhaps the kindest thing that I >can say about your Doctor is "How soon can you get another one?". Here is >another case of levodopa being witheld, when all the symptoms are crying out >for it. I wonder what symptoms your mother-in-law would have to produce to >make him change his mind! > >Regarding your specific question,One visit per year -perhaps a little on the >long side, for someone who has found a stable and effective tablet regime- but >not unreasonably so. BUT in no way does your Mother-in-law fit into this >category. She needs to be on a closely supervised drug evaluation programme >to sort out her requirements of levodopa,and when that is all sorted out, then >the neurologist can slowly fade into the background. > >-- >Brian Collins <[log in to unmask] > >