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At 03:00 am 01/11/96 -0500, Christina and Victor Honigber wrote: >I would like to say how I feel about the word caregiver. My feelings were then, >and still are, I hate the word. The word caregiver for me, and I can only speak >for myself, implies I am just the help. What would be an appropiate word to use >in place of this word? The Parkinson's Foundation of Canada, at the AGM in Vancouver this month, recommended the use of 'care partner.' It was felt that this term more accurately reflects the role. The Foundation also is discouraging the use of the word disease in connection with Parkinson's. >Subject: How is he doing? >Every time someone askes me this, my husband is with me. My responce is, >"Why don't you ask him yourself." I never thought a symptom of Parkinsons was >being invisible, I've lived with this situation all my life since my younger brother was born with severe Cerebral Palsy. Even though his affliction is very noticeable, he is not deaf and understands what people are saying. People still insist on talking about him as though he was not there. My method of dealing with this situation has been to turn the question to my brother, and let him respond. It is a matter of educating people that we who have Parkinson's or anything else, are usually still capable of thinking and speaking for ourselves. Judith