Hello.
I'm new to this list, so please forgive any repetitious requests.
My aunt in Virginia Beach, VA, was diagnosed in March 1996 with SND. We
are searching for as much information as we can obtain on treatment,
prognosis, protocol, and especially support groups. She knows of no one
in her area that has SND, and is anxious to be in contact with others to
form a support group.
I have found some medical abstracts on several Websites (UPF and
MassGen) and have searched through many links on the MGH Neurology Web
Forum.
Any information or direction that anyone can give us/point us to would be
greatly appreciated. I will also be happy to post a summary of any
findings I come across.
Thanks in advance
David Beach
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* David Beach + ESL Coordinator/Consultant *
* The Writing Center at George Mason University *
* 4400 University Drive + Fairfax, VA 22030-4444 + USA *
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"That so few now dare to be eccentric marks the chief danger of our time."
--John Stuart Mill
