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Dear Kees,

I was wondering what happened to you.  Remember me--I'm the American parkie
living in Australia you spoke to on the on the phone last year?  I'm not
writing the Victorian Parkinsons Association newsletter anymore as it has
been replaced with a quarterly national newsletter, and I opted out of being
on the Management Committee of the Association,  so I don't feel as involved
in 'the struggle' anymore.  Like you, I feel I've slowed down a bit in that
area, though I'm still working full-time teaching and working in the school
library.

It's getting a bit harder to handle all the demands, but I'm afraid that if
I retire, the lack of self-discipline I have will end up with my giving in
to the disease and becoming 'vegie-like'.  On the other hand, I like to
humour myself with thinking that if I had more time, I might get more
involved in writing, perhaps coming up with a playscript with a Parkinson's
theme.

You always struck me as being such a lovely man and tireless in your efforts
in working towards helping people with "the Disease".  I also feel grateful
that I'm not as bad as others who have this disease or more dreadful ones,
though I have occasional twinges of fear that there will be worse things
insidiously creeping up on me and am finding the 'off periods' more frequent
and dramatic.  However, when people ask me in a rather significantly serious
tone of voice how I am, I can't help but quickly answer "fine", which is
probably true for about 60-70% of the time.

I loved reading about the accounts of the visitors you had from America who
participated in the walk last year and hope we can organize something like
that here in Australia next year.  It's hard to get our Parkies moving
because the ones who have enough energy to do something are either too busy
coping with jobs and families as well as their Parkinson's or don't want to
be too involved with the association because they're still in a state of
denial with their Parkinson's.

Anyway, I'm running out of time on my connection.  Hope to hear from you soon.

Best wishes,
Celia Jones