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Some of you may remember that about 10 days ago I sent the list a
message relating that my father, diagnosed 13 years, had had a swift
downturn in his condition.  He went from being able to walk, climb
stairs, shower, dress and feed himself to needing assistance in all of
those things, in addition to much increased confusion and
hallucinations. All of this change without any change in his medications
or anything else apparent. His neurologist in Sarasota had said that the
rapid degeneration was not abnormal, and that there was nothing that
could be done.

Not accepting that diagnosis, I reached out to the list for
recommendations for a second opinion.  The Movement Disorders Clinic at
the University of South Florida in Tampa was recommended, along with Dr
Sanchez-Ramos who is there one day a week.

We saw Dr Sanchez this morning, and I am encouraged and impressed.  When
told of the rapid change, Dr Sanchez said that this is not a normal
progression of the disease, but probably due to a infection that has not
been otherwise noticed.  He prescribed a urine test, to see if a urinary
tract infection is present.  He said that a urinary tract infection is
often asymtomatic in older patients, and could cause the sudden change. =

One cheer for suggesting that there may be a problem, and taking steps
to fix it.

My father has had problems with fainting, falling, and balance, greatly
aggrevated since the change.  Dr Sanchez prescribed leg top tight
stockings, to increase the blood pressure, much increased salt; and if
needed in a week, a drug (fourinase?) to raise the blood pressure even
more.  A second cheer for breaking my Dad=92s problems into small,
solvable steps, and taking actions on those steps.

In a month, once the previous problems have stabilized, Dr Sanchez will
attack the pyschological problems. A third cheer for going after the
next big problem.

In short, I am encouraged that we have found a doctor that will take the
time and considerable trouble to solve, or at least try to solve, the
many problems that have affected by father.  As Dr Sanchez so aptly put
it, "Sometimes a family neurologist just can=92t take the time necessary
to fix the problems."

Moral of the story:  If your doctor says that nothing can be done, find
another doctor.  While of course we don=92t know if anything here will
work, at least we found a doctor willing to try.

I=92ll let you know what happens.

--Jefferson Harkins
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