Hello Everyone !!!
I hope some of you can answer questions asked by Christine Anne Sutter,
28 year old with PD.
One of her questions was do we know of any other young PWP's. I
immediately thought of Bev Stuart in our support group here in Santa
Barbara she has had PD since she was 25. She would be an excellent
contact person and is on the listserv if someone has her e-mail address
or I can call someone to get it.
There is also Greg Danton I believe he was 28 when diagnosed his e-mail:
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There was some mention of a younger YOPD group in the first U.S. Yopper
Focus newletter, lst quarter 1996, address as follows:
Bonnie Cohen
Borth Broward Neurological Center
201 East Sample Road
Pompano, Florida 33064
I think the "Arlette Johnson Young Parkinson's Information & Referral
Center, APDA Young Parkinson's Newsletter: 1 800 223-9776, Susan Reese
can help put young parkies together through the "People to People"
connection.
Christine, thank you for reaching out to us and giving us an
opportunity to answer your questions. There are some very knowledgeable
people in this group, wonderful caring people who I am sure will be
posting here in response to you or directly to your e-mail.
I was diagnosed nearly 2 yrs ago, I am 48, currently have similar
symptoms that you describe. I think most of us had symptoms way before
being diagnosed.
There are several new drugs coming out, research looks promising. You
will read about all this now that you are part of the listserv group.
Good Luck...... Barbara Jensen
805 687-2534
Santa Barbara, CA
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Barbara Jensen
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