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On Mon 02 Dec, Dennis Greene wrote: > Dear all, > > I am as new to the Internet as I am to this list so please forgive and correct any blu > nders I may make. > > My name is Dennis Greene and I live with my wife and daughters (9+16) in Perth, Wester > n Australia. > > I am 47 years old and have been diagnosed with PD for 10 years. I experience a pronou > nced "on-off" syndrome, which takes me on a daily roller-coaster ride from nearly norm > al (as I remember it) to playing statues in bradykinetic splendour. Points along the > way include varying degrees of diskinesia, and a particularily unpleasant distonia as > sociated with the sift from 'off' to 'on'. > > I hope to have a Paladotomy early in '97. > > Until 2 yrs ago I was still holding down a position in retail management. To-day I wo > rk from home as a technical writer. This allows me to pace myself and work when I am > capable. > > Living with PD is a war of attrition. I find the last 6 lines of Tennyson's poem 'Ull > ysses' a great aid to keeping me in the right frame of mind: > > Tho' much is taken, much abides; and tho' > We are not now that strength which in old days > Moved earth and heavon; that which we are we are; > One equal temper of heroic hearts, > Made weak by time and fate, but strong in will > To strive, to seek, to find, and not to yield > > Thanks for reading this, > > Dennis Greene > [log in to unmask] > > Hello Dennis, Welcome to the list. I am sure that you will benefit from joining us. I have a couple of things for you to consider; the first is trivial, but something that you need to know. Some people with older or more restricted equipment are limited to a text format with a max of 80 characters per line. Additionally, a reply usually generates a > symbol at the left hand side. In view of this, it is considered good form to limit yourself to a line length of around 77 characters per line. Second, and more important, I wonder if you might be interested in making use of a computer program which I wrote -first to help myself - and after considerable success in my case, to help other sufferers. The program aims to analyse your situation by analysing daily records using your own assessment of your condition. I urge you not to give up the fight against the on/off effect - As an example, I have been been taking Sinemet, Madopar, etc for 16 years, and am still getting good mileage from it. Without the assistance of the program, there are too many variable to allow you to understand what is going on. You can make up your mind at your leisure, assuming that you have a net browser, by going to the URL given below. There you will find a comprehensive presentation of what you will need to do and how to do it. I look forward to hearing from you. Regards, -- Brian Collins <[log in to unmask]>