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To Brian To Mark & Tommy Hi I agree --this is a time to bring out all possible sources of information. These are not complete addresses but they are a beginning. The National Parkinson Foundation at this email address <<[log in to unmask]>> said that they would forward my mail to Robert Nussbaum, M.D., of the National Center for Human Genome Research (NCHGR) Laboratory who was quoted as saying "We need the help of the public,................ to keep their eyes open for these unusual situations..." The tollfree number for the NPF is 1800-327-4545 Others who could be reached with a little persistence are Roger Duvoisin MD of the Robert Wood Johnson Medical School in New Brunswick, New Jersey, and the Istituto de Scienze Neurologiche in Naples, Italy. Someone with more initiative than me could track down Nussbaum, Duvoisin or the scientists in Italy Anne Rutherford