Print

Print


George,
A major obstacle can be finding any authority figure (board, council, etc.)
 to agree that a physician is incompetent to treat a PWP.

Most of us who find our way to a movement disorders specialist have a few
"irregular/unusual, etc." Parkinson's symptoms or are not responding
tremendously well to medication.......hence, we were not able to find
satisfaction with our family practioner or local "general" neuro for
treatment..................so to the specialist we would go.

1.  Mary mentioned several months back that her insurance provider would not
cover a Parkinson's specialist for consultation or second
opinion..........Mary probably felt that she received much better info from
the specialist than a general neuro practice.  Mary was probably correct in
her assessment.

2.  We in NE staged quite a protest when the only Parkinson's specialists in
the state were graciously encouraged to leave the UNMC to free more space for
other specialties (transplant).
We were told in PUBLIC MEETINGS numerous times by UNMC Administrators that
there were still 7 (or 8) neuros on staff who could treat Parkinson's.  In
reality........none of those remaining wanted to see us.............1
specialized in children's seizures, one in tumors, one in adult seizures and
so on.....
none of the remaining were PD specialists.  Eventually even the nurses in the
PD unit were dismissed. The administrators were dead wrong, proven so later
by  their own staff.......but would the admin ever admit error?

3.  Some physicians are not able to handle (emotionally themselves) chronic
degenerative illness.  I have worked closely with oncologists who will not
continue to treat a patient in hospice..........emotionally cannot handle
palliative care.  Wise person to admit this openly.  But neuro's who find it
difficult to deal with a PWP the same age as neuro......may find it very
difficult to admit their own human fraility.

4..  Geographic isolation is a problem.

5.  Telecommunications is available on a limited basis in NE but I do not
believe there is any availability to PD patients at this
time..............telecom. time is very tightly scheduled in many rural
settings..........large population and small staff to support.  More critical
issues to support.

Your ideas and suggestions are good........but incorporating some of these
ideas in rural areas will/could be almost impossible.
We have patients in NE (and other mid-continent states) who are more than 100
miles from nearest hospital (of any size) and probably travel 400 miles to
see a neurologist (not specialist).  Outreach centers from the University
service telecommunications to many parts of the state, but you could still be
talking hundred+ miles travel.  (We have school districts in this state with
less than 5 students!!!!!!!).

Solutions that appear easily implemented are often complicated by sheer
distance and isolation and physical fitness.

Rita