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Deeear (forgive my left hand!) dear Christine Bless you. And thank you for heaaring me. And for allowing me to hear you. I am with you in all you say. Just I feel my lot must be so much easier than yours to contemplate. I'm 52, so have 'had a life' so to speak. Just thoroughly pissed off at being deprived of the 20 years or so I thought was still 'mine' - or at having to share it with PD. Now I'm sure there are many more of us out there. Wanna come out? This is our list too, isn't it? I think our difficulties are significant - perhaps infinitely more significant than those of PWPs with carers. I've taken to saying (and this is neither original or new) that what I need most in life right now is a wife. Then I might be able to finish my Ph.D and get a job. And manage my PD. But on my own I find I can't hope to do more than just hang in. And worry about the future. Beth L. On Thu, 5 Dec 1996, Christine Anne Sutter wrote: > >I'm following these discussions with interest. But I keep wondering > >about those PWPs who don't have i. a caregiver, and ii. are not in a > >'loving relationship'. I'm sure there must be a whole bunch of folk who > >may experience these difficulties in quite different ways than i've seen > >aired in this forum. > > > >Anyone care to comment? How do single PWPs manage? > > > >Beth Leslie > > > >Beth - here I am - I am one of those that a: does not a caregiver and b: > does have not a "loving relationship" with a significant other > > At times it seems as if it is me against the world - as I am sure others > even without PD experience. My PD has not progressed to the point that > would necessitate a full or even part-time caregiver...but it is an issue > (although quickly responded to with a "don't worry about it") that I deal > with when considering or even thinking about a "loving relationship" with a > person that would possibly become my "caregiver" - > > Does this person realize how my disease COULD develop? > Is this something that he can handle or even WANT to handle? > > It honestly feels at times that I am not "normal" - and therefore, not > "complete" - a lot of folks out there carry alot of garbage along with them > and it is not until a "relationship" has developed that this garbage is > exposed. With medication, my symptoms are (for the most part) masked. But > at times it is very evident that there is something physically wrong with me. > > I don't know if any of this is really answering your questions - but let me > tell you it is not easy. I do have a strong support system of family and > friends - but not anyone that is with me consistently - > > I guess for me at 28 years old - the fear is missing out of a special > relationship with someone that may have to eventually become a full-time > caregiver. I am an independent person who continually needs to prove she > can do it on her own - and who knows how my PD will progress. > > For whatever this is worth - > > Thanks for letting me vent. > > Christine >