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I will have to join Carol and Marling in their observations that sons do not
seem to be able to discuss a parent's Parkinson problems. It does not seem
to be a matter of youth and emotional inexperience, since our two sons are
at the leading edge of the baby boomer generation. My husband and I have
recognized that it appears to be a cultural matter, rather than something
involving male genetics or birth order. The fact is that their father's
rapidly deteriorating condition is distressing them terribly, and they grew
up, like many males of their age, keeping their emotions under control in
public. I keep them informed of new developments in their dad's slide
downward into total disability. And I have begun to talk to them about the
options that we will have to face up to in the future, perhaps this coming
year. They listen in silence, but they hear me, and the pain they feel is
clearly written on their faces.

When children live their lives away from their childhood nest, and only see
their parents during brief visits, the full impact of the problems of late
stage PD is less clear. Our younger son is spending a week with us over the
holidays and is getting the full impact of the changes in his dad's
condition since he saw him last. Our first-born son lives nearby, and the
changes have been absorbed more gently, like aging. The impacts are
different, but equally painful. Much more important than words is their
obvious desire to help with whatever needs to be done, now, or in that
tomorrow none of us is eager to talk about.

Martha (CG for Neal, 76/11)