>Ralph/Karen > >You wrote: > >> My Mother is a longtime pd patient. She has a lot of trouble getting >> comfortable during the periods when she shakes. She seems to be in >> pain, and gets very agitated. Her doctor says he has never seen this >> before. He knows she is going to shake at times, the medication just >> doesn't control it anymore, but she shouldn't be so uncomfortable. >> >> Do other patients have this problem? If so, what can we do to help? >> >It sounds to me as if your mother is experiencing the dyskinesia >associated with long term exposure to levadopa. I can speak from >personal experience in confiming that this can be extremly painfull. > >Ask your doctor to look at the problem again from the viewpoint >of to much medication. Some PWP find that vitamin C helps >reduce the dyskinesia and by extension the pain and discomfort. > >hope this is some help. > >Dennis > >Dennis Greene >[log in to unmask] > My wife Gwen is also on a high dosage of Sinemet and has been for several years. She takes a medication called "Kemadrin" which gives her great relief from dyskinesia. You might ask your Dr. about it. Best regards, Don Summers A Shy-Drager Caregiver Who Lurks