>Ralph/Karen
>
>You wrote:
>
>> My Mother is a longtime pd patient. She has a lot of trouble getting
>> comfortable during the periods when she shakes. She seems to be in
>> pain, and gets very agitated. Her doctor says he has never seen this
>> before. He knows she is going to shake at times, the medication just
>> doesn't control it anymore, but she shouldn't be so uncomfortable.
>>
>> Do other patients have this problem? If so, what can we do to help?
>>
>It sounds to me as if your mother is experiencing the dyskinesia
>associated with long term exposure to levadopa. I can speak from
>personal experience in confiming that this can be extremly painfull.
>
>Ask your doctor to look at the problem again from the viewpoint
>of to much medication. Some PWP find that vitamin C helps
>reduce the dyskinesia and by extension the pain and discomfort.
>
>hope this is some help.
>
>Dennis
>
>Dennis Greene
>[log in to unmask]
>
My wife Gwen is also on a high dosage of Sinemet and has been for
several years. She takes a medication called "Kemadrin" which gives her
great relief from dyskinesia. You might ask your Dr. about it.
Best regards,
Don Summers
A Shy-Drager Caregiver
Who Lurks
