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At 02:52 PM 1/7/97 -0500, you wrote: >Hello all Pds > >This is a message from Anne & Mohan Jacob. We are from Pune, a city in >Western India, close to Bombay ( now called Mumbai). Anne had been >diagonised as a patient of PD since way back 1989, when she was in her mid >thirtys. > >It was quite shattering when we were told she suffered from PD. Over the >last 7 years we have on our own tried to explore various avenues to >overcome the problem but it has been quite frustrating. Sinemet was not >acceptable to her system, and then she stuck to only Eldepryl, which was >fine till she started getting stiff and immobile. She was put on Tidomet ( >a combination of Ldopa and Carbodopa) and we found her reacting to the >medication (Involuntary violent movements). It was fine if such reactions >were predictable and hence controllable, but when it became unpredictable >it became embarrasing. > >Over the last two days ever since we have got connected to PARKINSN site >we have realised that we are not exceptions, there are many more similar >PDs, in the height of their youth and suffering even more. While there >are many similarities in the symptoms the reactions are different to the >medication if not in symptoms atleast in the degree of reaction. > >Is the medication the only way out? Is there no other way? We are >convinced there are other ways! We have heard of snippets of somebody >being cured. Someone else being able to cope with the problem very >admirably. A friend had contacted PD around the same time as Anne, but >she decided to scrap the medication and fight the problem head on. And >today, though the problem still persists she is able to carry on a normal >life as a succesful Business woman, attending to work, home(she is a >mother of more than one child) and socials with equal vigour and >enthusiasm. So there is hope! If there is hope there is a solution. > This is my predicament. Like your friend, I have dedided to fight it to see the results. Someone said, "You'll know when you have to start the medication". New to the list, it is a pleasure to read you , all of you, daily. Your dedication is staggering. Will join in now to your comments. Fell >Yesterday when we saw the Home Page of PARKINSON's DIGEST, we read about >the cause for passing the UDALL bill in the US senate. Although there is >no update on it we hope that it got cleared. There is hope! And if there >is hope there is a solution. > >We have learnt that many of the holistic medical streams claim of cures >for the illness. Take for example ACCUPRESSURE, ACCUPUNTURE, REIKI, >AYURVEDIC, NATUROPATHY, etc. But then we have not come across any focussed >treatment of PD under any of these streams. Maybe someoneelse has and has >benefitted from it. These cases need to be publicised so as to benefit the >entire community of PDs. So there is hope! And of course there is a >solution. > >We have been experimenting over the last couple of months with Ayurvedic >treatment supplementing the Allopathic medication. While we experienced >some noticeable benefits, such as more energy, skin glowing, >youthfulness, etc., eventually it all came to naught, as there was an >excess intake of Ldopa. The Ldopa came from natural sources (Ayurvedic >medication) and also from synthetic sources (Allopathic mediaction). >Hence the lesson we learnt from this experience was by all means try out >alternative medication, but never should it be an uncoordinated effort. > >Anne felt wonderful for about 15 days after the intake of Ldopa was >drastically reduced. In our enthusiasm when the intake was futher reduced >it had the reverse effect. The symptoms deteriorated. At present we are >experimenting on the correct dosage and medication under the Allopathic >stream of treatment. Very confusing is'nt it. Back to square one. Well >then through this entire journey we picked up HOPE somewhere and >eversince then we believe there is a solution. We are hoping you all will >join us in finding it. > >In all the various streams of medications, be it allopathic, homeopathic, >ayurvedic, accupressure, accpuncture, reiki, naturopathy, etc., there are >dedicated individuals who are commited to finding the correct solution >for their patients. We need to bring them together to fight PD. > >Whew! Did we say a lot! But then there is hope and then there is a ....... > >How do we go about it then?? Any ideas?? > >Happy PDing to all! > > >bye and regards > > >Anne & Mohan Jacob >PUNE, Maharashtra, India. >