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At 12:36 AM 1/7/97 -0500, you wrote:
>My name is Lee, and I am new to this list. I am 33, live in Seattle, and am a fundraiser for the Northwest AIDS Foundation. My mother was diagnosed with PD after a trip to Mayo and a couple of years of unanswered questions. At one point, she was diagnosed with PSP.
>
Lee, a good place to start is the archives....attached are directions to get specific articles.
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THIS IS THE REVISED CURRENT PARKINSON'S TOPICS BY E-MAIL MESSAGE.
DISCARD EARLIER POSTINGS BY THE SAME NAME.
Current Parkinson's Topics by E-Mail
Welcome new subscribers and those who have found the address to the
Parkinsn Archives through out the World Wide Web!
Two services are available at [log in to unmask] One is the ability to
request a search for information. Another service is the availability
of this message, which catagorizes messages that have previously posted
to the Parkinsn list and now reside in the archives. These messages
may be ordered.
For those not acquainted with the Parkinsn list, it is a e-mailing list
of Parkinson's patients, care-givers, family members, neurologists,
psychologists, family practice doctors, and manufacturer representatives
that represent the pharmaceutical industry and equipment manufacturers.
We currently have about 1400 members in 34 countries around the world.
The language of the list is English.
Postings to the list are only accepted from subscribers. If you join us,
you will have that privilege also. The Parkinsn list is a high volume
list, having from 20 to 30 postings a day, some quite long.
If you wish to join us, send an e-mail message to:
[log in to unmask]
In the body of the message put ONLY FOUR WORDS:
subscribe parkinsn Yourfirstname Yoursurname
Within a short while you will receive acknowledgement and a welcoming
message.
Subscription is not required to receive the archival material mentioned
in the rest of this message. This is a public service.
Everything ever discussed on the Parkinsn list is in our archives.
Periodically, a message called, "New Parkinsn Archives Information
by E-mail" is posted on the Parkinsn list.
"New Parkinsn Archives Information by E-mail" gives instructions on
the kinds of searches available, examples, and information on how to
request them.
Many of you have learned about the Parkinsn list from friends
or reading the Wall Street Journal and New York Times articles about
pallidotomy. This message gives answers on how to directly use the
Parkinsn archives and get information NOW while you are "coming up
to speed".
MSG Finding Answers to Frequently Asked Questions:
order
number
ARTICLES
001 New Study links Eldepryl/Deprenyl With increased Mortality
This study from the UK raises some controversial questions on how often
Parkinson's patients die from long term Eldepryl/Sinemet treatment.
002 Article on Information on Aging
This article was posted posted by Alan Bonander, ELDER CARE: THEY'RE AGING,
AND YOU'RE WORRYING 8/26/94 When children grow up, and parents grow old
Published: Aug. 22, 1994 By KATHLEEN DONNELLY Mercury News Staff Writer
If someone you know and love needs help, this article will give you a
starting point to look for social agencies that help the elderly.
003 Young Onset PD
This article was posted by Alan Bonander entitled: THE YOUNG
PARKINSON'S PATIENT By Erwin B. Montgomery, Jr., MD
This article appeared in the Parkinson News & View, Southern
Arizona Chapter APDA, June / July 1994. It is reprinted with
their permission.
Young onset Parkinson's patients and caregivers need to read
this article.
004 Medicare/Medicaid...Congress wants your Home/Car
Article posted by John Cottingham. An editorial by Christopher
Matthews from the San Francisco Examiner on attempts in Congress
to take the cars and homes of those family's with serious illness.
005 Tai Chi Exercise Reduces Falling in the Elderly
Newspaper article posted by John Cottingham, Tai Chi Keeps the
Doctor Away, Research Says / Chinese exercise helped elderly keep
from falling by Paul Recer
006 Wall Street Journal article on pallidotomy
Margaret Monty's posting of David Stipp's article in The Wall
Street Journal entitled Hope From a Knife-----Surgery for Parkinson's
Brings Success Stories In Face of Skepticism
007 News on the Parkinson's Front
Several articles compiled into one message...interesting reading.
008 The Scientist: Brainstorms Abound At NIH's NINDS
An article from The Scientist magazine outlining where research is
going at NINDS.
009 More: Physics and PD
010 Drugs: From Compound to Pharmacy
011 What Parkinsonians Should Know About Social Security Disability
Insurance
012 Disability Evaluation under Social Security
013 Incontinence: What the Algorithm has to say, and More
014 ADL and UPDRS Role in PD Treatment
015 Pallidotomies or Thalamotomy on an Outpatient Basis?
016 Chinese Influences in Western Medicine
017 Can't Remember Your Name...How About Singing?
018 RESTLESS LEGS
019 Confusion , Cold Intolerance, Constipation...How i+
020 Ability to regulate eating declines in elderly
021 New Dystonic Tremor Case Study by list-member, T. Davis
022 Mouse Gene May Lead To Clues by M.A.J. McKenna
023 Surgery and transplants show new promise: by Judy +
024 PALLIDOTOMY; A chance for a normal life by M.A.J. +
025 Listmember Quoted in Toronto Pallidotomy Article
026 Parkinson's Abstracts presented at AAN Convention 1995
WORLD-WIDE PARKINSONS CHATTING INFORMATION
050 Parkinsons Chat Room
051 Getting from AOL to the Undernet Parkinsons channel
PD HUMOR
060 Wednesday PD-humor By David Boots
061 HUMOR: Sinemet chain-letter
062 can't get it up (a twisted pair variation on an ol+
063 Fred Turner, Funny Glossary of Medical Terms
PALLIDOTOMY INFORMATION
PALLIDOTOMY FOLLOW-UP STUDY
075 M. Dogali, E. Fazzini,E. Kolodny Pallidotomy Follow-up
STIMULATION, (PALLID AND THALAMIC) INFORMATION
STIM Clinical Trials in Progress
080 Thalamic Stimulation at Vanderbilt, Dr. Thomas Davis
081 Breaking News, Dr. W.C. Koller/Busenbark Pallid STIM
Technical Details, Patient Selection
085 Thalamic Stimulation System
086 Deep Brain Stimulation References
087 Don Sandstrom's Thalmic Stimulation Experiences
CONTENTS OF CURRENT RESEARCH STUDIES
090 What is Parkinson's Disease and how is it treated?
090 What is Essential Tremor (ET) and how is it treated?
The following questions are answered in 0091
091 What is Shy-Drager Syndrome (SDS) and how is it treated?
091 What is SupraNuclear Palsy (SNP) and how is it treated?
091 What is Multiple System Atrophy (MSA)?
091 What is StriatoNigral Degeneration (SND) and how is it treated?
091 What is OlivoPontoCerebellar Atrophy (OPCA) and how is it treated?
091 What is CorticoBasal Ganglionic Degeneration (CBGD) and how is it treated?
091 What is Diffuse Lewy Body Disease (DLBD)?
091 What symptoms may or may not be present in Parkinsonism Plus Syndromes?
Table 3.
092 Adverse Reactions to Sinemet CR in the Elderly : Joseph
093 Drug-Induced & Tardive Movement Disorders Gwen M. Vernon
094 Tremor: by Marjorie M. Gillespie
095 Dose-response Relationship of Levodopa/Mood/Anxiety
096 A Study of Hereditary Essential Tremor Bain et al.
DIET
097 Dietary Factors in the Management of Parkinson's Disease
098 Re: Fava Beans!
099 Eating Fava Beans in Old San Francisco
100 Three Fava Bean Recipes
101 Mailorder sources for Dry Fava Beans
102 Favism, Faba, Sinemet and Parkinson's
DRUG TRIAL ANNOUNCEMENTS
103 NIH Study on Slowing or Stopping PD Progression
104 NINDS Studying Postmenopausal Estrogen Replacement+
PARKINSON'S PLUS DISEASE ETIOLOGY AND DIAGNOSIS
091 PD & PD+ Syndromes by Mark Stacy/J. Jankovic
RECOGNITION AND TREATMENT OF PARKINSON'S DISEASE
090 Recog/Treat of Early PD & Other Tremor Disorders by Mark Stacy/D. Brownlee
NEW MEDICINAL APPROACHES TO TREATING PARKINSON'S-STUDY
106 NADH--a new therapeutic approach to Parkinson's disease by Birkmayer JGD
MEDICATIONS USED IN THE TREATMENT OF PARKINSON'S DISEASE
105 Medications in PD
106 Quick PD Drug Glossary
108 Constipation Protocol
109 Corrections to Constipation protocol
CONTENTS OF ABSTRACTS IN THE ARCHIVE
200 What Is DHEA?
201 What is Melatonin and How Is It Helpful?
202 NIH Grant to design and synthesize Co-factor of TH
203 Vitamins E and C, Useful in Parkinson's?
204 Gastrointestinal Problems Encountered With PD
205 Does It Take You a Little Longer to Think Now?
206 Are Melonomas Activated by Carbidopa/Levodopa?
207 Has Aluminum Been Implicated in PD?
208 Are Environmental Factors Implicated in PD?
209 GM1, An Elixir of Life for a Damaged Dopamninergic+
210 Cisapride References
086 Deep Brain Stimulation References
211 A Relationship between Diabetes and PD?
212 fava beans and Mucuna pruriens Natural L-dopa in t+
213 Cerebral Palsy with parkinsonian symptoms References
214 Essential Tremor: Another use for GM-1 ganglioside?
215 The 2 1/2 Hour Erection..How To..or..Not To
216 Ganglioside GM1
RESOURCES
How do I make a Parkinson Alert ID Card which lists
217 the medications I take and drugs that can hurt me?
218 Care-Giver Handbook
219 Algorithm for Managing Parkinson's Disease
220 Blue Glasses Tech Info
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ORDERING MESSAGES
You are now ready to order messages from the Parkinsn archive at
[log in to unmask]
Prepare a message to:
[log in to unmask]
On the Subject: line put CT:220 Blue Glasses Tech Info
(The CT: indicates that this is a Current Topics request. The 220 means
message number 220 and following that is the name of the message.) ONLY 1
Current Topics message request per message. I will reply to this message and attach message 220 to it. Please limit your requests to 5 per day.
This is easy to do with the copy and paste function of your mail program.
Again the example will look like this:
To: [log in to unmask]
Subject: CT:220 Blue Glasses Tech Info
Only one message will be sent per each request with a 5 request per day limit.
NOTHING IS REQUIRED IN THE BODY OF THE MESSAGE.
Send the message. In a short while, the requested document will be in your
mailbox.
I haven't set a limit on the number of messages you can request, I have just adjusted the way of ordering them so that I can deliver them to you using the least amount of time and labor on my part.
PRINTING NOTES
Many of the messages and studies contain information in columns. Print the
messages using a non-proportional font. This will allow the items in columns, to line up.
Some of the studies were multi-part. For my convenience, I have recombined
them into one package for sending. If you wish to print them, use your word
processor to put the parts back together in the correct order. All of the
parts, ie. pt 1/5, 2/5 etc are clearly labeled even though they may have
been packaged out of order.
Due to the size of some documents, simple text editors may not always work
to view and edit them. Use the import function for ASCII files in your word
processor to do this.
THIS IS A TEST:
1. What does the CT: that I put on the Subject: line of my message mean to John?
A: The CT: will tell him that your message is a request for a Current Topic
message.
2. What does that number mean that I put after CT: on the Subject: line?
A: The number is the Current Topic message order number of that document and is found in the left hand column of the listing of documents. It tells John which message to attach to his reply to you.
3. If I put the message number on the Subject: line, why put the name of the message there also?
A: The message name is a check to make sure that the message number wasn't a typo and likewise when you get the message back, you will know what is
contained in that message.
4. How many messages can I request with each CT: message?
A: One Current Topic message will be sent for each CT: request.
5. How long should I keep this listing of Current Topic messages?
A: Until the message is updated, usually monthly.
John Cottingham To search the Parkinsn archive, send search requests
to [log in to unmask] with Archive Search as the subject.
LibraryH Search of the Subject: line, From: line and Body are
possible. Look for "Current Topics...." message for
[log in to unmask] Articles and Studies available by e-mail.
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[log in to unmask] That man may last, but never lives,
Who much receives, but nothing gives;
HomeBoy #Parkinsons Whom none can love, whom none can thank,--
Creation's blot, creation's blank.
John Cottingham Thomas Gibbons (1720-1785): When Jesus dwelt.
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