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At 08:39 AM 1/9/97 -0500, you wrote: >Hello, >My name is Leila .I have watched this list on and off for the past 1.5 yr >first lurking & then joining and learned a lot, laughed with, and felt a lot >of compassion for the trials and tribulations of the members. I am >Venezuelan (French-Belgian mother) now US citizen, 54 and suspected Parkie >for 7 years. The first apparent signs were in late '89 with sharp >'permanent' left shoulder pain and very intermittent light tremor on left >hand. Also hot 'spots' on front and inside of both lower legs. MRI and >several other tests were done, looking for pinched nerves and what not. At >one point a doctor said I probably had some disease from "where you come >from" (as I recall, something to do w/ a worm...) While conducting those >tests, a hyperthyroid condition was discovered and has been stabilized with >synthroid. The neurologist has kept track of the slow process where now >there is more tremor in left hand and some in left foot and I do not swing >my left arm very much when I walk. No more pain in shoulder. He has given >me Eldepryl 2 x day for the past 6 years. (I also take 2000iu vit E, and >1000iu C) I am quite active physically - the building where I work has a >gym w/ an excellent trainer, so I weight-train hard twice a week. I did >this for 10 mos and whenever I come back to the US. > I am also here in the US temporarily (Dec. to Feb) since I am in the >process of sailing around the world with my partner. We planned this for 10 >years and finally "did it": departed, sold most possessions etc. in April >1993. We have been through the Virgin Islands, Panama Canal, Galapagos, >Marquesas, French Polynesia, Samoa, Tonga, New Zealand, Fiji, New Caledonia, >and now Australia. We will be starting out again with the sailing season in >April, and continue to Indonesia, Singapore, Malaysia, Thailand, Sri Lanka, >Oman, Yemen, Red Sea, and end up in Cyprus in april 1998. There is quite a >lot of physical activity, especially when in ports, and while I notice I >might do a few thing slower (precise finger movements involving left hand) I >also know that my mental attitude has drastically changed from the fast high >pressure pace to the "island way, manana, laid back"... so I consciously >have slowed down and enjoy it more. Low pressure & low stress definitely >reduce 'shaking" - so does temperature the colder it gets the more I am >prone to shake. By the way, I never shake when I go to bed. I have never >seen someone on list mentioning this. >Leila Have constant tremor in my right hand, arm and leg and tremor is present in bed where I count the people I have had seen at home or on TV - only way to fall asleep. I envy your travels - sounds like freedom. Fell >This was a long intro to the point I wanted to make known to all of you: >This morning I picked up my Deprenyl prescription at a local large chain >pharmacy (Giant)and fully expected the drug info. profile to give a warning >about Demerol use(at a minimum). No such warning appeared and after calling >the pharmacist who said they got their printouts from a database ( he did >not seem overly interested in my concern) I called Sommerset Pharmaceuticals >1-800-892-8889 who were very interested and were going to find out more >about the matter as I gave them name , tel & fax of my pharmacy. >Has anyone seen a warning with their prescription? > >JUst a few thoughts on closing: thank you all for all the tremendous >efforts of support, information, activism, humour and chenanigans (Jao: = >locuras). You are all wonderful people and I hope to be able to contribute >to the group. >