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Bernard Joly wrote enquiring about my diagnosis...

Bernard,

Thanks for your helpful response.  As to diagnosis - I've seen one
Parkinson's specialist, who says he's 80% certain I have PD, and one
Parkinson's nurse (highly experienced), who says she'd put it rather higher
than that.  But I'll take your advice, and seek another opinion.

Funnily enough, the slight uncertainty is part of my own psychological
armoury against PD:  I have an inner determination to show these medical guys
that they were wrong all along, and I think this helps me keep a fighting
spirit.  Intellectually I think I've accepted that they are probably right,
but emotionally there's a stubborn part of me that wants to prove that they
don't know what the hell they're talking about.  ME?!  HOW COULD I POSSIBLY
HAVE PARKINSON'S? DON'T BE RIDICULOUS!  I'LL SHOW YOU!

A few months ago I was offered a PET scan (Positron emission tomography, with
doped 18F DOPA), which is one of the only ways to get a positive diagnosis
(and very expensive - but health care is free in the UK!).  I declined, as
the ray of hope that it's all a silly mistake helps keep me optimistic and
carrying on doing things which as a confirmed Parkie I might think were
beyond me.

I'd be interested to know more about your own psychological techniques.

Best wishes.

Tim Sanderson ([log in to unmask])