David wrote
> > I think I have tried about everything to deal with the problem -sinemet with
> > and without cardidopa, sinemet CR , halving tablets and taking at shorter
> > intervals, no protein diet,pergolide (good), ropinoprol( not so good seems
> > to make the dyskenesia worse) The only other regular drug for me is
> > Seleginin twice a day and I've even tried knocking that out to see if it
> > makes any difference.
> ><snip>
> All of which brings me to some final points;
> >
> ====================================================================
> Brian wrote
> If you will forgive me for blowing my own trumpet a little, David, there is
> one major thing that you have not done, and that is to make use of my
> analysis program !! If I cast my mind back a few years when I was beginning
> to hatch the concept of the program, I was just like you - casting around
> desperately trying to find some sort of formula which would control my
> symptoms. It became obvious that I was trying to keep too many balls in the
> air at the same time; there was too much going on. Like any Engineer, I
> decided that the only option was to write a program, so I did.
Dear Brian
Reading your posting, another posting came in my mind, Albert Young wrote:
>I could not get
>ends. Those lovely folk tales went to the grave, untold. Now you might
>rightly ask "What in h***'s name does this have to do with us"!!! Well at
>times I feel that some topics or projects are ignored because "IT'S TOO
>MUCH PARKINSONS".
Your irritation,Brian, and the one of Albert have some common cause, I guess.
Albert expressed the desire to make things less fleeting, the different objects
less stumbling the one over the other. But they do stumble and by all this
stumbling, people may feel they have to prevent chaos in themselves by
preventing to be to much influenced. May be that is why your program is a bit
scary, Brian. It seems to appeal to people for something they resist (for
example: behavior change). This sounds more critical as I intend to be and
I don't blame the list-members nor you for it. The abundance of information in
our culture may sometimes have a cost next to many advantages. Valuable things
may be snowed under. We have to live with that.
I agree with David that being able to discriminate between peak of med's
symptoms from end of med's symptoms is an important issue. Especially if the
time that a med. is active, is variable the importance can hardly be too
underscored couldn't we try to take the bull by the horns. Brian's program
starts when the discrimination of too much and too short is done. If I am
wrong here let me know. I would like yet for one time to put all my symptoms in
a row, send that to te list and after that follow Brian's system and send the
results to the list again. Might be some others, seeing what it is all about
and seeing the sense it makes, like to do the same.
Besides, before taking the decision to an operation, I really want to have
tried all things that seems worthwile.
Ida Kamphuis
Holland
