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Ruth,
        Thanks for sharing your story.  I'm 47 having had symptoms for 10 yrs,
diagnosed for 3. I have 2 daughters (9 and 12) and the family is always
a concern. It seems my wife and I worry more than our kids, as I suppose
it should be. However, we are real up front with them and this helps
them deal with it. Good luck. This group is a good place for support and
ideas.
Paul
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