Ruth, Thanks for sharing your story. I'm 47 having had symptoms for 10 yrs, diagnosed for 3. I have 2 daughters (9 and 12) and the family is always a concern. It seems my wife and I worry more than our kids, as I suppose it should be. However, we are real up front with them and this helps them deal with it. Good luck. This group is a good place for support and ideas. Paul [log in to unmask]