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On Wed, 29 Jan 1997 03:13:58 -0500 Dick Swindler <[log in to unmask]> writes: >Ivan - > >In a message dated 97-01-29 01:31:02 EST, you write: > >>But it's the uneasiness about dealing with neuroSURGERY that is >bugging >>me. >> >>Anyone been there before? > >You didn't say if you're slated for a pallidotomy, so I'm going to >guess >that's what you mean. (If you have time, write back and let us know >if >that's the wrong guess). >Best of luck. Margie > Hi Margie and others listmembers, Thank you for your late-night message. You guessed pretty WELL!...I am not, however, slated for a pallidotomy yet. I am just going to gather information about it, and other procedures that might be appropriate. I don't know anyone who has had pallidal stimulation. Is pallidotomy primarily for those with resting tremor??? OR with paralysis?? I usually have tremor only for a few moments, either when suddenly stressed, or, when my medicines are in the process of wearing off, and when I ATTEMPT movement at those times. It is a rapid tremor, and not what is normally called "pill-rolling" tremor.... My most AGONIZING problem is freezing up, especially at night, combined with the frequency at which (every THREE hours) I have to take more L-dopa, 24 hours a day, to prevent freezes. The freezes include extremely PAINFUL muscle tightening , from the sides of my head to my toes and arches. NADH helps, but these painful freezes still occur. Did your husband's symptoms include repetitive " freezing up?" Those of you who can manage to respond briefly, was it your TREMOR, or FREEZING UP, that your pallidotomies improved? Or was it both symptoms???? Finally, is there anyone out there who has had surgery with Dr. Laitenen of Stockholm?? He is so much MORE EXPERIENCED , as far as I know. My friends (I am single) also want to know about long-term improvement. DO we have a special post-pallidotomy group of listmembers? Do some of you track long-term improvement of a large number of us? OR success rates of different surgical teams? I've heard that Emory and NYU are more successful. Is this true? Why?? Here in Maine, there are NO Parkinson's specialists, and no post-pallidotomy PWP's that I've heard of. That's why we leave lobster-land for beantown (Boston), and that's why I'll be in B.U.'s Parkinson's clinic today. THANK YOU in advance to all who are able to make the time to respond. Gratefully and patiently , and a little anxiously, Ivan Suzman 47/10 land of lighthouses/le pays des phares