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As the owner of the French speaking list Parkliste, I wrote to Association France Parkinson some weeks ago. Some of you may be interested by the written answer I just received today : I have approximately translated part of it. "Our Association is just about to launch a European project as a member of European Parkinson's Disease Association (EPDA). The data base to be installed on the elected network will be controlled by the Medical Advisory Board of EPDA, in such a way as the responsibility of the national associations will not be involved." "It is France Parkinson's policy to refuse our support to private initiatives" "Having said that, I understand your interest in communication between PWP ; you are free to create, under your name, the list you wish" No comment Bernard JOLY [log in to unmask]