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Barbara
Yes Yes Yes
You are absolutely right.
It puzzles me why PWP are invisible and unheard

Twelve years ago the Honorary Chairman of Parkinson Week in Toronto
read all those fine words in the CERTFTCATE OF RECOGNITION ---only we
called it a  "Proclamation".
The Chairman, a successful public figure and businessman, then said in
the kindest way that we would go nowhere unless we made a loud, united
and public noise.
Sadly, he was right,
and I can't shout any more

Anne Rutherford