At 04:41 AM 2/17/97 -0500, you wrote:
>Hello again from Maine!
>
> Are any courageous PWP's, or their caregivers, willing to share
>their stories of your pallidotomies that have NOT succeeded---where you
>are WORSE than you were before surgery?? Or have MISERABLE
>side-effects???
>
> I am considering pallidotomy, but I MUST KNOW MORE ABOUT THE
>DANGERS before going further. So far I have noticed that, we
>listmembers tend to inform ourselves about the successful surgeries, and
>I FEEL THERE IS A LOT MORE TO THE STORY!
>
> My closest friend, Tom, in between baking batches of applesauce
>cookies, said to me yesterday, "But Ivan, what about the RISKS??"
>
> Thanking you advance,
>
> Ivan Suzman, 47/10 Portland, Maine/ land of lighthouses
>6F. snowing
> You are wise to check out every detail.
A friend we have made, due to this ailment, had a pallidotomy that
made no difference. After a year or so of visiting, they came over and
observed Gordon , before his last surgery and we went over, of course, as
soon as we could after. It was then they took our suggestiion on having
another work-up with our esteemed surgeon, Kim Burchiel, Portland, Oregon,
the Oregon Medical school. His observation was he had not been a candidate
for a pallidotomy in the first place.
Now, differences to Gordon are marked, Gordon shook so badly and
medications had run their course, he was doing liquid Sinemet. OPur friend,
on the other hand, is in pain. I gather he stiffens so he can't get up
easily, yet walks well. His speech is normal. He does not feel well, ever.
Sinemet helps some. He is on the contact list for the latest medication they
are working through.
Oregon Health Sciences Un. is a teaching hospital, of course, and I
feel they know much about the "latest", for better or worse.
Anyway, for him, the hope is the next meds. The pharmacists have the
beginning info on pramipoxele (sp?) he informed us yesterday.
I hope there is something in this message for you.
>
