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Mary Brenzel wrote:
>
> I too am new to this list.  My 80-year-old father was diagnosed with PD about
> 7-8 years ago.  His condition is worsening.  Hallucinations, sleep problems,
> agitation.  His mobility seems to be ok but, mentally, that's another story.
>  It is so depressing and frustrating to see him that way during the few hours a
> week that I visit.  I can't imagine what my poor mother (also 80) is feeling.
>  I don't think that she's getting any help from the doctor's office.  But then
> again, my mom's not one to complain and probably is too proud to ask at the
> neurologist's office for support group and other information to ease her
> through this experience.  I am close to tears when I think of what she is going
> through and I need to get her some help.
>
> Does anyone on this list live in the Western New York area (preferably the
> northern suburbs of Buffalo)?  Can anyone provide me with information about how
> to get my mom the help that she deserves?
>
> On Feb 19, 12:32pm, S.J. Wolfe wrote:
> > Subject: PD dementia
> > Hello, I am a newbie to this list, so please excuse me if I am asking
> > about something which has been recently covered.
> > My mother has PD and I am curious about PD dementia. She is 73 years old,
> > and very very forgetful, forgets words, people's names, etc. The doctor
> > says it is not Alzheimers, and that it is due to her meds. She takes three
> > cinemet (sp?) per day. She is also sometimes very petulant, and has an
> > exceedingly short attention span, all of which drive my poor father
> > slightly bats.
> > I have been in a position to go and stay with her when he goes away, but
> > this is changing and I will no longer be able to do this. Does anyone know
> > if there are PD support groups in the Westfield/Springfield Mass. area?
> > She also has macula degeneration and is losing her sight which doesn't
> > help.
> > Please respond to me off list if this is repeat information which would
> > bore everyone!
> > TIF
> > S.J. Wolfe
> >
> >
> > ************************************************
> > *    ______                                    *
> > *   /      \                                   *
> > *  | --88-- |  S.J. Wolfe --**-- Per-Seshen    *
> > *  |  ____  |  American Antiquarian Society    *
> > *  | |_//_| |     [log in to unmask]        *
> > *  |        |                                  *
> > *  | /\/\/\ |  A brain the size of a planet,   *
> > * __\______/__     and here I am ...           *
> > *                                              *
> > ************************************************
> >-- End of excerpt from S.J. Wolfe
>
> --
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> Mary Brenzel                                    Voice:  716-687-3175
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For Mary Brenzel. There is a support group in Rochester, New York;
Parkinson's Support Group of Upstate New York, a chapter of the National
Parkinson Foundation. We have been members since August and have found
it very helpful. Possibly a member of your family could attend a meeting
if there is no such group in Buffalo. There will be a symposium on March
15 presented jointly by our group and the University of Rochester
Neurology Mind Unit. Call PSGUNY voice mail at 716 234-5355 or contact
us by e-mail for details.
John and Donna Testa
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