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---------- > Fra: Judy Trivedi <[log in to unmask]> > Til: Multiple recipients of list PARKINSN <[log in to unmask]> > Emne: atypical parkinsons > Dato: 22. februar 1997 17:32 > > hi > i have been reading as much as i can this list & did a lot for udall bill > last year & was excited to do my part this year > in ca we also wear a silver ribbon for pd & was hoping the whole community > could find some symbol in common and maybe some very visual spokes person > > iwas diagnosed a nov 96, am 51, had just completed myn ca teach credential in > 91 > have tried to keep very positive attitude doing things i wanted to do all my > life ( spend a week w/ friend etc) > everything has been progressing very quickly so i have feared it may be other > than parkinsons > > yesterday my doctor said the devestating news-since the meds don't seem to be > working -it may be atypical- i haven't cried yet- i had such hopes for the > new meds coming out and new research but i don't think there is much > research going on atypical, there is one woman in our support group who has > it and she was not given long to live > > i guess i just wanted to tell my story somewhere and to some one > i am trying to stay calm for family > > i have a very supportive husband and two great ciollege age kids > > would really appreciate some up lifting or otherwise comments on my situation > > I have been trying to live by > god grant me the serenity to accept the things i can not change > the courage to change the things i can > and the wisdom to know the difference > > in need of some support > judith([log in to unmask]) Dear Judith, don`t give up, we Parkinson patient are all more or less a-typical, you are welcome to write me in private, because I have been told several times that I`m a-typical too. I got the diagnose 3 years ago, and to day I`m feeling fine because of my medicin. Best regards from Sonia