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>From the midwinter desk of Ivan Suzman  ([log in to unmask])............

Dear listmembers,

Thank you all who have written so far, and  shared your feelings about
my proclaiming my GAY  sexual orientation to our listmembers..

There are many reasons why it is ABSOLUTELY NECESSARY  for me to IDENTIFY
myself as GAY to the Parkinson's List......

  Here are just two examples:


1. OUR PUBLIC IMAGE ON THE OPRAH WINFREY SHOW

      In the last few wonderful weeks, mostly thanks to the DEDICATED
work of Stan Houston and Barb Mallut, we have teasingly,  but also very
seriously,  begun our first effort to be visible on the OPRAH show.

     Could the sight of two men holding hands in loving support of each
other , a PWP and his CG, and REPRESENTING us on OPRAH,  make the
Parkinson's world recoil in internal turmoil? Would our Parkie style of
propriety, especially in this age of Udall Bill work, discriminate
against us same-gender partners??

      WE talk about being VISIBLE, but the heterosexual PWP 's and CG's
are burying the thousands of GAY  Parkinsonians. An obvious fact supports
this:
I AM THE ONLY GAY PWP who feels safe enough, so far, to be open about my
sexual orientation. Ask yourselves why this is happening...............

      If I, as a gay, younger (47), blue-eyed blond, bearded  PWP, held
on to,   or hugged, or gently kissed his very cute,  special, 32 year-old
 male friend ON THE AIR,  and while REPRESENTING OUR  PWP COMMUNITY, that
behavior  would be perfectly natural for me.  But  a lot of our
listmembers would probably, I am disheartened to say, find this behavior
to set off red flashing sirens, screaming," out-of-bounds!" Is this
fair???

    These expressions of love and support, SO acceptable in the hetero
world, would probably be the source of an outcry of "OH NO, DON'T  LET
THIS BEHAVIOR REPRESENT US!"

    So, listmembers, what do you feel is acceptable?  Please be honest.
I already know from  at least one message sent to me after  I had said,
like Barb Mallut had also said with an excitement that had me in stitches
with laughter,  that I MIGHT enjoy seeing a man wearing a kilt (I didn't
say  anything to suggest I would pursue dear Jeremy Browne!), that the
Parkinson's Community has never confronted the homophobia that pervades
and divides us from one another..

   And unless we are open about our worries, we cannot move towards a
consensus.

2. CAREGIVER IMAGE

   If you look through the MAGAZINES AND FOUNDATION REPORTS  on
Parkinson's (at least what I've seen), we GAY and LESBIAN Parkinsonians
have NEVER EVER been shown with our CAREGIVING PARTNERS, as role models.

....It's no wonder gay and lesbian PWP's and CG's are hiding.  WE ARE
STILL EXCLUDED.
      ANd that EXCLUSION hurts us.

     So, I must  pursue this, because I feel like I am a lone voice for
thousands of creative GAY and LESBIAN PWP's and CG's who are completely
INVISIBLE.
We have so much to give to our whole community, but will you let us do
that for the benefit of all, while meanwhile not pushing us into the
closets of the world??

     So my question is, WHAT PUBLIC IMAGE OF PWP's AND THEIR
CAREPARTNERS is comfortable for you??  What public image is unacceptable
as a role model of our common battle??  Again, PLEASE be honest.
..........................................................................................................................................................
"The world is like a spider's web---touch it anywhere, and it quivers
everywhere"


 Ivan Suzman
47/10  Portland, Maine
land of lighthouses
and, "Proud-to-be-gay!"
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