 |
 |
At 12:14 PM 3/3/97 -0500, you wrote: >I am curious about this Daily Symptom Status Evaluator. Can someone send me >info about it? > > >Much thanks! > >-- >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~ >Mary Brenzel Voice: 716-687-3175 >Senior Programmer/Analyst Fax: 716-687-3366 >Fisher-Price, Inc. Email: [log in to unmask] >636 Girard Avenue >East Aurora, NY 14052 >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~ > Our Work Is Child's Play >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~ >Hi Mary, I sent you the total package of the DSSE underseparate Email. The package contains 5 separate sheets, hence it is less of a memory burden then the whole group getting it. Anyway, the DSSE is a system to help monitor and record a number of symptoms of PD. There are 18 specific and most common of the PD symptoms, plus a form that is free of symptoms that allowes one to write what information or unique set of reactions they wish to record. In addition there is a form for noting medications, dosages, physician, and date of use. The design is set up so one may use a three hole loss leaf ring binder, and for easy copy of the forms. The symptom pages are set up for 7 days. The introduction explains the coding suggested, essentially, +,0, or -, and am or pm times to record. The purpose of this is to help document the experiences PWP to better communicate with their caegivers, family, doctors and their support system friends. We have been asked to develope a more finite system for drug reaction, and we are trying to come up with a relatively easy form for that. What research has clearly defined is the problem of compliance. This has also been true even with research subjects. What we have tried to do is to make the procedure simple and easy, and, if I may, fun to use. Many of the "major" contributors of this Information Exchange List have addressed the problem of MANAGEMENT of Parkinson's Disease, and the necessary involvement with one's treatment. We think our DSSE offers that opportunity. We have attempted to keep it simple, with the understanding the easier it is to use the more participation, the more complicated the less. You may write me or Joyce Saylor at: [log in to unmask] Thanks for your interest, hope this helps Bernie Barber >