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Bob Hills wrote:

  Charley wrote > My Neuro's opinion is that
  > younger patients should postpone the use of Sinemet, if possible,
  and
  > later minimize its use.

  Keeping off L-Dopa for as long as possible has been my strategy for
  the
  past five years, based on my early readings, some excellent
  YAPP&RS seminars, discussions with other early onset Parkinson
  sufferers and last but not least this list.My consultants don't
  disagree
  and to be honest I dread the thought of the  potential side effects.
  Which
  is worse; stop or go??

  But now the tremor is getting worse; holding a cup of tea in work
  meetings
   is "challenging" [I can't cock my little finger :-))]  and stand up
  fork
  buffets are a "nightmare" [How do you hold the plate, the glass
  attached
  to the side, and eat? Answer : I don't :-(( ]. And writing on a
  white
  board? No chance! And my speech is getting quieter and the mind
  getting
  slower, I think ?

  So!  Do I go for this "miracle cure", which may have no serious side

  effects for 5 - 10 - longer(?) years. Will I recover my confidence
  and
  standing at work? It is my choice, I'm in control ;-)

  Answers on a postcard to me :-))

  Best wishes to you all

  Bob  45/5
  Leeds, England

 Bob it sounds as though you are making a strong case to not put off
taking Sinemet. As I understand it, the rerason for taking sinemet is to
slow the progressiveness of PD. By not taking it you have possibly
allowed it to advance at a faster rate than it would have. But then it
is probably just a roll of the dice, as all of us react differently. If
I were you I would get the advice of a Movement Disorder Specialist or
at least a Neuro who has extensive PD=A0experience. especially if your
present neuro dosen't.

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