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In-Reply-To: <[log in to unmask]>
Bob Chapman e-mailed me
>  Bob it sounds as though you are making a strong case to not put off
> taking Sinemet. As I understand it, the rerason for taking sinemet is to
> slow the progressiveness of PD. By not taking it you have possibly
> allowed it to advance at a faster rate than it would have. But then it
> is probably just a roll of the dice, as all of us react differently. If
> I were you I would get the advice of a Movement Disorder Specialist or
> at least a Neuro who has extensive PD experience.
> especially if your present neuro dosen't.

Bob, thanks for the comments.I hope you don't mind me copying your message
on the List but I'd be interested in other current views (Is that a second
opinion? :-)).
I'm currently taking Benzhexol (Artane)to ease the tremor and Selegeline
(Eldepryl) in the hope that the latter retards the process and delays the
need to move to levodopa. As I understand things Sinemet consists of
levadopa mixed with carbidopa which helps ensure that more levadopa
reaches those parts of the brain that need it. This helps minimise the
dosage.
It is the side effects of taking levadopa over a long period which concern
me. It might be fine in the short/medium term but then come those
involuntary movements. I need a quality of life :-) and I need a job for a
few more years yet :-( . So my bottom line is to throw two sixes with your
dice: six years without levadopa and at least six taking advantage of any
improvements. After that who knows? Parkinson's may have a cure and the
world might be a better place :-)

Regards

Bob
Leeds, England
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