Thanks to you all for responding on this. Ken, full marks for lateral thinking. But if ever I was faced with a choice that made me emphatically opt for 'improper' medication this is it. I did joke to Ernie recently that 'I need a wife,' but this is not quite what I had in mind! But it did make me chuckle. Beth >Beth, just tell him you demand a sex change operation, so you can get >proper medicationI If he is working for an HMO and trying to save money >by giving you cheaper meds, he'll have to realize the meds will cost his >employers much less than the surgery! (Just kidding!) > > > > >[OO] LOOKING FOR RADIOS! >Ken Becker >[log in to unmask] > > >On Thu, 13 Mar 1997, Barbara Mallut wrote: > >> Beth... I was appalled to read that you're being WITHHELD l-dopa! >>(Sinemet or >> the equivalent). This seems like an issue of _CONTROL_ to me, rather than >> the practice of a responsible and caring physician. >> >> Since PD is a disease which effects each individual is a somewhat different >> manner from every other individual having the disease, what possible >> difference could I take if you were a male, head of household, working to >> support a wife and kids, and going to lose your job because of the disease >> making dramatic inroads into your life?! The disease IS terrible, and >>you DO >> have it, and you're YOU... This is NOT a gender issue or an occupational >> issue, and your physician MUST be appraised of that!! >> >> If the MD then won't prescribe what IS the drug of choice for most >>people with >> PD then get another doctor! Even an internist or family practitioner .... >> heck, even a PEDIATRICIAN can prescribe you Sinemet!!! (or the equivalent) >> >> This is NOT a "gender-related" disease, its' a HUMAN-related disease. Your >> life IS your life. You'll NEVER be that male your MD has declared you not to >> be. You're going to be YOU for the rest of your life, and your physician >> SHOULD be treating you with the most useful drugs for YOU... the person you >> are, not this fantasy he THINKS should get this valuable drug! >> >> And Beth... don't you DARE trash your research project! WHEN you're on the >> right medication, and possibly also an anti-depressant,, you'll be raring to >> finish that research and to move on with your life. >> >> YOU GO GIRL!! >> >> Sending a buncha love your way.... >> >> Barb Mallut >> [log in to unmask] >> >> >> >> >> >> ---------- >> From: Parkinson's Information Exchange on behalf of Elizabeth Leslie >> Sent: Wednesday, March 12, 1997 3:20 AM >> To: Multiple recipients of list PARKINSN >> Subject: Symmetrel >> >> I'm seeking a bit of guidance on this. I've seen the neuro today. He >> agrees I need treatment. He agrees l-dopa would make me fully functional. >> He sent me away with a script for Symmetrel! He told me it could take me 3 >> months to feel any benefit from it. He did agree - a touch reluctantly, >> perhaps even a little sheepishly - that if I were a guy with wife/family to >> support and at risk of losing my job he would not withhold l-dopa. (One >> good thing tho' - I did find out from him how/where to get my Selegiline >> cheaply. That's a relief.) >> >> Guess what folks? I'm not feeling so :) Getting ready to trash my research. >> >> I'd really like to hear from anyone who takes/has taken this med. And any >> other advice you care to fling my way will be welcome. Off-list is fine. >> >> Thanks, >> >> Beth >>