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This is a long post,  Unless it interests you, pass it by.  Sorry for the
length,   Thx, the Ratman

Tribe of Parkinsonians.... I am having a very difficult time with the SS
disability approval process.  I left my job last April, filled out the
appropriate Long Term Disability insurance carrier forms to my company's LTD
carrier's liking, had my neurologist sign off on them and got approved for
LTD.

After the 4th or 5th month the insurance company "encouraged" me to seek
disability status from Social Security so the govt would pick up part of the
costs.  Well I filled out the forms and then took all the info I had
submitted to the LTD carrier and cut and pasted it to fit the format the SS
board and our State's Dept of Econ Security wanted.  Then, I waited.
  Eventually, their reply came back stating my request had been denied. Talk
about giving water to a drowning man.  I felt abandoned; I felt like I was
rapidly losing control of my life.  At this point, the gist of their reply
seemed to hinge on the following mantra

>>>
we have reviewed your medical record and it shows you have received treatment
for your condition and that your condition does limit your ability to work.
It does show that you may no longer be capable of performing work such as you
have done in the past.  However, based on your age, education and past work
experience, we conclude that your are still able of performing other work
which requries less mental or physical effort.
<<<

Okay, round 2.  I hit up our own John "the scribe" Cottingham for some
archival information on what the govt is looking for.  To be able to outfight
your opponent in such verbal jungle warfare ... you have to think enemy,
 sleep enemy,  eat enemy,  walk enemy,  be enemy.  I tried to take the
information I provided previously and shape it more in the way that (I
thought) showed my limiting factors and problems caused by my  disease.  I
also asked my neurologist, a excellent and well respected doctor who holds a
position in the national NPF organization, to write a letter describing the
symptoms I had, the problems my Parkinson's caused me, why I was essentially
not able to go the distance anymore.  Granted, I have my good periods, but I
also have my bad periods and net/net the confusion and exhaustion I
experience make it too unpredictable and difficult for me to hold down a
regular job anymore..

Now, almost a year after I left work, my appeal comes back denied.  I am
between a rock and a hard place.  At the end of the year's time since I was
actively working, my company formally terminates me with all rights and
privileges thereto appertaining (in other words... take a walk) .  I become a
ward of their LTD carrier and am offered continuing health insurance if I pay
 the group rate myself... of course, all this is also contingent upon my
being approved for SS disability benefits.  If this approval is denied, I
have no idea what happens.

What am I doing wrong?  What is wrong with the system?  I thought the purpose
was to provide a safety net and protect the worker.  Instead I feel like
their goal is to humble and humiliate.  After being a computer systems
analyst for a number of years it now appears the govt's intent is for me to
rachet my income down to match my impaired and continually declining
abilities until some dismal level is reached at which  I am a drooling zombie
incapable of making change.  Then upon meeting their criteria I can be
cashiered out of the system at 60% of a drooling zombie's salary.  Well, as
the jazzman Les McCann sings "Compared to what?!?"  What the hell kind of a
system is this?

According to SS,  my next appeal is a court process.  I think I am now faced
with procuring the services of a Disability process consultant and/or a
Disability lawer (probably both).

My questions:
 1) have any of you out there had to go this route?
 2) what are the chances of success as such appeals escalate?  (ie. does it
become harder and harder to win based on their recognition that you have been
denied previously?)
 3) does anyone have any good and hopefully tested suggestions on how to make
this process work?

If you deem your information on the above topic and the topic itself worth
group bandwidth, then fire away.  Otherwise would those who think they can
help me please send their responses off line and directly to me?   I would
appreciate all candid remarks and suggestions you can make.  If due to
circumstances you wish your information or suggestions to remain private or
your identity anonymous I will gladly respect your wishes.  I realize that
while this is a subject of interest to almost all of us on this list it is
also a very sensitive issue.  I can still joke about it because I  usually
joke about anything whether that is a good course of action or not but time
is running out and I am in a big, big jam..

Thanks,
Don Anderson ([log in to unmask])