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Last week I asked ya'll about decreased pain sensation with PD. I got 5 responses: ============================================= Author : Andrew John Conovaloff <80965> To : [log in to unmask] Subject : Pain & PD Written : 03/17/97.04:14pm An interesting question regarding PAIN and PD was raised at our monthly PD support meeting today. Some PDers report little pain sensation, others report intermittent sensitivity. I volunteered to ask PARKINSN members, if you have PD or a PD+ do you have a high tolerance for pain after injury (cuts, falls, bruising, etc.)? Today, Dr. Jeffery Joyce, the PD specialist at the Sun Health Research Institute in Sun City, Arizona, presented an excellent slide show explaining the dopamine pathways and how the new PD drugs compare to c/l-dopa in affecting the D1, D2, and D3 receptors. During Q & A and discussion, he was unaware of the desensitivization to pain symptom. My aunt, who had PSP, had an extremely high pain tolerance. After a dead weight fall banging her head onto concrete, she'd deny falling and claim not to feel any pain. Later when I'd push on the big lump on her head, she admit she could feel it. She'd hardly wince when breaking bones, falling into cactus, or cutting herself. Before I intervened she lived alone and had 20+ lesions on her back from falls and cuts, none medically treated. To conserve listserv chatter, please reply directly to me. I'll post a summary of all responses in a few days, and I'll send it to Dr. Joyce and invite him to join our PARKINSN listserv. 0===================================================================0 | @..@ A.J. CONOVALOFF | | (----) "The Molokan Cyber-Cowboy" __o | | ( >__< ) PSP Support Groups of Arizona `\<, | | ^^ ~~ ^^ [log in to unmask] . . ..(*)/`(*) | 0===================================================================0 1. ---------------- Author : "Barbara Duffin-Bates" <[log in to unmask]> Written : 03/17/97.05:49pm Just the opposite observation with my husband, Iain. He is in agony with a constant pain in his arms and has been for almost a year. His physician believes that the pain is caused by Iain's rigidity and the constant twisting of his arms due to dyskinesia. But it is so bad that he really cannot do anything with his arms at all. He did try going to a physiotherapist, but she seemed at a loss. We have mentioned the problem to many health care professionals, but no one seems to have any suggestions. Barb Bates 2. ---------------------------- Author : [log in to unmask] Written : 03/18/97.03:59am I am 52 years old, have PD 12 years and feel less pain than before. 3. ------------------------------- Author : Denham Miriam <[log in to unmask]> Subject : Re: Pain & PD Written : 03/18/97.07:01am My husband, Dale, 74, dx 1988, has dementia with his advanced parkinson's. He also has a high threshold for pain.The children and I comment on how fortunate it is that he rarely complains of pain. Occasionally he has leg cramps (he doesn't like bananas) that I massage or heat treat. Before he became so incapacitated, he attributed the cramps to phosphate (?) shortage and would eat bananas for a few days. Miriam L. Denham [log in to unmask] 4. ----------------------------------- Author : [log in to unmask] Written : 03/19/97.01:12pm My father had CBGD (Cortico-basal Ganglionic Degeneration) a distant relative of PD and had no pain until approximately 2 weeks prior to his death. In addition, my father-in-law who has PSP also falls alot and says he doesn't have any pain either. When my father was alive, I spoke with a Doctor Grafman from NIH who explained that they may have pain but not be aware of where it is at. Sort of like an itch one may have but not being able to identify where to scratch! Would be interested in hearing your results. Please keep me in mind. Sincerely, Theresa Roberts [log in to unmask] 5. ----------------------------------- Author : Margaret Tuchman <[log in to unmask]> Written : 03/20/97.09:39am Andrew: I always thought, and was told, that I was stoic. I do feel pain, and have a long line of experience in my medical history of surgery, falls, accidents that were quite painful, but not unbearable. I don't want to sound like a masochist, I figure that I have a higher tolerance for pain. Margaret ========================= If any more come in I'll let cha know. 0===================================================================0 | @..@ A.J. CONOVALOFF | | (----) "The Molokan Cyber-Cowboy" __o | | ( >__< ) PSP Support Groups of Arizona `\<, | | ^^ ~~ ^^ [log in to unmask] . . ..(*)/`(*) | 0===================================================================0