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(Pssst) <whispering> I really DID know ya were there, Camilla <smile> And I also know ya post regularly about the CARE list, which just shows how conscientious ya are as well as caring. Thanks m'dear, for your response. I know its' never easy when we're dealing not only with chronic disease, but feelings and fears, and pain - both physical and emotional. The role of caregiver is one that no one up and volunteers for, and yet, most people do an admirable job at it when pushed, however unwilling, into that role. My virtual hats' off to all who are in the caregiver position, no matter the illness or injury their loved one may have. Barb Mallut [log in to unmask] ---------- From: Parkinson's Information Exchange on behalf of Camilla Flintermann Sent: Saturday, March 29, 1997 3:58 PM To: Multiple recipients of list PARKINSN Subject: The"NH experience" To Barb , Nancy, and Don, as well as other PWPs. (Yes, Barb, I'm HERE!) There is indeed a CARE list for CGs, and the discussion you wrote about has taken place there , believe me. I try to post the notice about the CARE list regularly fr new members here, without doing it so often that I bore everyone else ! That is also why I mention CARE in my signature, and I've had quite a few inquiries as a result of that. That list is a place where CGS can and do "vent" About the pain, frustration, and problems of their role, and where they share the positive experiences which are also part of our daily lives. It's not all "doom and gloom", believe me..... That said, I thank you for sharing your honest reaction to the thread about NH as a last resort--and believe me, it IS that, and CGs try to avoid that "solution" as long as possible, using all their strength,as well as home health care,etc. I have yet to read one CG's post which indicated that their PWP was in any way "dumped" or moved to a NH as a matter of convenience. The stories are full of love and sadness when that alternative is unavoidable. In order to continue to function, live the best we can each day, all of us have to practice a little healthy "denial", just as we do when we know that we can be hit by a car tomorrow, but go on planning the day's activities. I know I "stuff" a lot of things that may be part of a future reality but would only make me depressed now-that's just a way to cope, and a healthy one, too. Since CGs belong to and read this list, as well as CARE, I expect that they will be sensitive to the feelings you have expressed, and I again invite all CGs to join CARE, which now has about 230 members in 15 countries. To do so send to:<[log in to unmask]> this message in body (no subject needed): SUBscribe CARE(your full name) You will be sent further information by my co-owner, Jeff Jones,the techie wizard of CARE! Camilla Flintermann, CG for Peter, 78/7, Oxford,Ohio [log in to unmask] * * * * * * * * * * * * * * "Ask me about the CARE list for PD caregivers!" * * * * * * * * * * * * * *