>From: Naomi Meyer <[log in to unmask]> Subject: The Nursing Home > Hello, all. I've been reading >all the communications on the list, but I haven't written anything >for a long time because I've been trying to deal with the Nursing >Home admission of my husband, Dave, since January. After he was >hospitalized for 2 weeks from a psychotic reaction to zyprexa, I >came to the conclusion that I could no longer manage at home >without help around the clock. If he fell, I was unable to pick >him up by myself. I could not leave him alone at all. Since I >have a job and for various other reasons, my only solution was the >nursing home. We had more or less expected this -- Dave has had >Parkinsons since 1972 -- and knew this might ultimately be where >he would find himself. My father (77/4) has been in a nursing home for about 2.5 months, after a month's hospitalization. An associate suggested caring for him at home, by hiring nurses' aides. This does not appear practical. Dad could probably hire aides for $9 or $10 an hour (including Social Security tax and benefits), but this would come to $1680 a week (168 hours for round-the-clock availability). The nursing home costs about $966 a week. Dad currently has one shift of private duty aides, who put him through range-of-motion exercises. I am currently getting these aides through an agency, but this is expensive; since it looks like Dad will need long term care, I will probably look for some independent aides. 56 hours a week would add about $560, for a total of about $1526. (The only reason I have kept the agency this long is to get one particularly good aide for 40 hours a week, but she is taking the summer off.) The primary consideration here is quality of care, not cost (Dad can fortunately afford the nursing home and a private duty aide, at least for now; he also has a 3-year nursing home policy that kicks in after 100 days). The nursing home has the following, which would not be available at home: -a registered nurse on duty 24 hours a day -medical equipment for response to emergencies -a lift for transferring non-ambulatory patients -facilities for bathing non-ambulatory patients -social activities during which Dad sees other people (at home, he would see only me and the nurse's aides) It is very important to monitor the nursing home (or hospital) to assure quality of care. I visit Dad, not only to see him, but to make sure the staff is taking care of him properly. The private duty aides also report to me when something has not been done, and I make the nursing home aware of it. This is apparently one of the better places in the area, but they still miss things; e.g. my father's dentist thought his teeth were not being cleaned properly. I informed the home verbally and in writing that Dad's teeth were to be brushed and flossed daily, and I supplied an Interplak toothbrush for this purpose. (You also have to keep an eye on the hospitals; I arranged the private duty aides because I did not think the hospital staff was caring for him adequately.) The home, however, is not giving him physical therapy (he did not respond to it, so the therapist discharged him). This would apparently be a problem anywhere, though, due to Medicare restrictions. The therapist did train the private duty aides to give Dad range of motion exercises. The doctor may try to get physical therapy for him again in a few months. In retrospect, I think it was a mistake for Dad to stay at home for as long as he did. We wanted to avoid the cost of a personal care residence (about $18,000 a year), but there would have been people around all the time. We were hoping to rely on taxicabs to get Dad to social activities, but his walking became so poor that he hardly dared step out the door (even with assistance, and a side rail). -Bill