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hi all again from leigh, someone asked if my mds knew i had pd. here's that story. in1995 i was referred to a movement disorder specialist who concluded to give me a diagnosis of "possible parkinson's disease" and went on in his report to say i might have an atypical form of pd. in 1996, my regular md at the pain center diagnosed me this way: "basal ganglia dysfunction/probable parkinson's syndrome". i asked what the difference was and he fumbled a bit, then said well if it is pd syndrome it may not progress. that was sweet to hear, but it has and is progressing, though not at any rapid rate i don't think. the meds make it hard to tell how much progression there has been. i am aware these are not traditional pd meds, so if anyone has any advice it's surely welcome here. several othre meds were tried: wellbutrin, which took away my appetite, effexor, which i could not tolerate at all,and benadryl for sleep, which was ok except for the hangover. i now use melatonin for sleep, and it has been very effective until recently when the foot and leg cramps have returned w/a vengeance. this of course wakes me up and that's it for the night. my md says there was a study done at wayne university (i think that's right) using neurontin for pd that showed some good findings. if i can remember (hah) but i will try, i'll ask him for more info on that study. as much info as you guys have access to, it may already be in the archives. i spoke with a physician at barrow neurological institute who said they were doing trials with neurontin. this was about a year ago, and he stated thry had not seen anything definitive at that point, but it may be worth looking into for some of you folks. thanks for being here. shake rattle and roll..............leigh