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There is a PSP Association in the Uk (PSP Europe). The registered office is at22 Upper Woburn Place Lonon WC1H 0RA the contact is Maggie Rose a Nursing Counsellor ( tel:01604 858336). I am not sure which countries have a PSP Assoc but I am sitting reading thier leaflet. I see that on the medical panel is Prof Golbe and Prof Litvan form the USA. I hope that is a little help. regards Emma At 13:35 13/04/97 -0400, you wrote: >Anyone have experience with PSP (Progressive Supranuclear Palsey)? It's >becoming quite clear that this is what my mother inlaw is dealing with. >She's in a near-coma, on life support and NOBODY'S DOING ANYTHING to >help. They're concerned about a lung infection and that's the sole focus >of the doctor's help. I'm watching this from long-distance, and feel >helpless to do anything. > >I've searched the web for PSP info, and have gotten some helpful stuff. >I'd love to hear of personal experiences or ideas. > >Thanks, friends. > >Maggie >long-distance advocate for Bernydette, 77/1 > >