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I have a delicate situation here. My mother is THE caregiver for dad, she
wants the best for him, it is obvious, and she trusts this particular
neurologist. If I were able to be there all the time to help, I would,
but I must work. She now has help come in twice a day to get him out of
bed, showered, fed, etc, and at night to put him back in bed, he sleeps
most of the day. When he was more active, and getting more Sinimet, he
was also very hard to handle, would actually hit or slap anyone who would
cause him discomfort, this is not his normal personality, which is
non-violent, pleasant, and having a great sense of humor. Mom is scared
that he could become storger and start fighting again, and she could be
right, but I doubt it.  I am going to try to contact the company that
makes Aricept, or maybe ask around the net, if they have documentation of
its use for Parkinson's, that might impress the doctor, I would hope. HE
was willing to read the email, and discuss it, which is a start.  I know
if I could force the issue, I would, but I must tread lightly,for now. It
is frustrating! Thanks for the additional information, everything helps.
I hope your mom continues to improve.




[OO] LOOKING FOR RADIOS!
Ken Becker
[log in to unmask]


On Tue, 8 Apr 1997, Carol L. Brow wrote:

> On Tue, 8 Apr 1997 00:37:34 -0400 Ken Becker <[log in to unmask]>
> writes:
> >WELL today was the day, the neuroligist was going to be told about the
> >wonderful properties of Aricept. He said he was familiar with it being
> >used to treat Alzheimers, but it was not a good idea to give it to my
> >father, who he decided was doing well, after asking him some
> >questions, he said he was lucid, and did not want to "rock the boat" by
> changing
> >or adding meds at this time. He also wants to do another  checkup in 3
> >months.
> >He implied that the Aricept's positive effects may have been a placebo
> >effect for Carol's mom. I feel different
> >
> >[OO] LOOKING FOR RADIOS!
> >Ken Becker
> >[log in to unmask]
> >
> This is Carol, Louise's daughter and I KNOW different.
>
> Ken, it is a shame the Nuro won't even give Aricept a try.
> Does you dad have a family doctor who might proscribe a
> trial dosage. You should know right away if it is going to
> do you dad any good.
>
> Yesterday, as my mother was feeding herself a
> salad using a fork with a large diameter handle I had
> purchased for her months ago thinking it would be easier for her
> to hold,  I remembered that before PD and now I am
> sure it was mostly Altzhimers took away her ability
> to feed herself she used to insist on eating with
> her "Granny" fork. You know the type; brown wooden
> handle with three sharp tines.
>
> I hadn't given it to her for months because
> I feared she would stab herself perhaps in the
> hand or any other part of her upper anatomy
> perhaps even the tongue if she got lucky and
> located her mouth and otherwise
> hurt herself. But now I thought I'd let her try it
>
> Instead of trying to balance lettuce, tomato,
> cucumber and  onion, she proceeded to stab each
> morsel and delftly insert them one by one into her
> mouth.
>
> This can't be placebo.
>
> My sister-in-law told a friend whos mother has only Altzheimers
> about Aricept. She contacted a doctor immediately and he wrote
> out a prescription.
>
> The first thing people who know her notice are her eyes. They are
> alert and look you right in the eye and they indicate that she
> understands.
>
> Ken, Did the nuro  indicate any medical reason why Aricept might hurt
> your dad? If not I wouldn't give up until I found a doctor to prescribe
> a trial.
>
> Carol
>